pediatric melanoma

Rare Disease Day: Ross's Story

February 26, 2018 | Categories: Causes, Events, Patient Stories, Policy, Types of Melanoma

Guest blog post from April Muhlbauer, MRF advocate and mother of a 13-year-old pediatric melanoma warrior.

“I didn’t know anything about melanoma or skin cancer before I got it. I didn’t think I would ever get cancer. I want kids and adults to be aware and know about skin cancer so they can do things to prevent it from happening to them. I want people to know about my cancer and learn from it to protect themselves.”
- Ross Muhlbauer, 13

FDA Expands Approval of Ipilimumab For Pediatric Melanoma Patients

August 3, 2017 | Categories: News, Research, Treatment

Last week the United States Food and Drug Administration (FDA) expanded approval of Yervoy (ipilimumab) to include pediatric patients ages 12 years and older with unresectable or metastatic melanoma. Yervoy, a monoclonal antibody that activates the immune system by blocking the CTLA-4 receptor, was first approved in 2011 to treat unresectable or metastatic melanoma in adults.

In Christy's Words: The 2nd Annual Pediatric Melanoma Summit

August 22, 2016 | Categories: Events, Patient Stories

"Mommy, thank you so much for taking me to Great Wolf Lodge again!" Moses wrapped his arms around my neck, with great big tears streaming down his face.

Moses - #GivingTuesday 2015

December 1, 2015 | Categories: Causes

#GivingTuesday is almost over but it’s not too late to give a gift to the Melanoma Research Foundation (MRF) to help stop melanoma in its path. Christy and Dan share why they support the MRF and their fellow pediatric melanoma families.

Graham - #GivingTuesday 2015

November 30, 2015 | Categories: Causes
#GivingTuesday is TOMORROW, December 1! Join Graham in Supporting the MRF.
 

Mission vs. Business

February 26, 2014 | Categories: Causes
I had coffee recently with a woman who has a family member with pediatric melanoma. “No one is doing anything about this,” she told me. No one has built a website for this group, no Facebook page exists for exchange of ideas and support, and no single source of information on this issue is available online. She spends hours every week talking with others like her, trying to answer their questions and offer some support and guidance. Her ask was simple—have the MRF help meet this need.