Hi there to everyone that may read this.
I am Renae and live in the South Island of New Zealand. I am married to Michael and we have 3 children ranging from 16 to 3.
A month ago Michael was diagnosed with metastatic melanoma. Stage 3.
2 weeks ago he had a level 3 auxillary node dissection. yuck.
When we were given his diagnosis when his histology and ct results were back (the day of my 33rd birthday) we were told quite clearly that there is nothing that can be done for us here in NZ. There are no trials running and the Doc also stated very clearly that radiation and chemo were of no help to us.
The primary has not been found,
The Doc removed 18 nodes and thought as she was doing it that they were all riddled as they were black.
However apparently they are all clear bar the one that we definately knew of, the tumour in it measured 5.5cm. Huge apparently. Looks revolting also!
The specialist found out that we were working out what day to head to Mexico or anywhere really to find some sort of treatment as there was nothing here to cling to and at our next appt (last wednesday) she said that because of the size of the thing we were allowed to try radiation. We have health insurance so atleast there will be no extreme wait or congestion in the process.
I am however having a real issue with this, why do we put ourselves through this when the chance of it doing any good are so small? There is noway (that I am aware of) of the docs being able to tell us if the radiation has achieved anything or not.
Is it worth it while the primary is there somewhere lurking??
I am really wanting to find out from anybody and everybody about any treatments. Conventional or otherwise. We will go anywhere and spend anything to fix Michael.
He is the love of my life and the best father to our children, I am not going to take this lying down. I will get Michael through this and win this fight.
I am aware that alternative is a bit airy fairy but maybe there is something in it?
We have no trials here in NZ available to us, apparently we could try one however when he is in the last months of his life category. Cheers that is verey beneficial NZ.
I hope that everyone has a very merry xmas and a fantastic new years!
We will be up our gully, sitting on our deck having a bbq and drinking a few speights beers. Doing all the things we shouldn't be really, very soon there will be no fun until Michael is all better!