Onward with the story, my story, our story. I made an appointment with Dr. Falchook at MD Anderson for a consultation since I was in Houston anyway for the meeting. He had labs done before I saw him. He walked into the room and started by saying "We're not going to talk about cancer, we're going to talk about hospitalizing you--right now!" My calcium level was critically high. It took them nine days in the hospital to lower it enough for me to go home.
The same thing (hypercalcemia) happened to me a year ago about 2 months after my last ipi infusion. Turns out that now is about 2 months after my last reinduction of ipi. So, with this little evidence, we are concluding that ipi causes hypercalcemia in me.
Hypercalcemia causes lots of symptoms, among them mental confusion. So, when I attended the conference I knew my mind was muddled, but attributed it to effects of aging. Looking back on it, I am embarrassed by how truly confused I was. I apologize to any of you out there whom I may not have recognized right off, or with whom I may have had ditzy conversations. I'm getting back to what passes for "normal" for me in the brain department.
To remind you, the last treatment I had was a reinduction of ipi, last infusion mid-January. Two weeks after that scans showed progression, no shrinkage. I'm in the process of looking for what to do now. I feel OK, and am grateful for that.
To those of you I met at the Houston conference, I thoroughly enjoyed seeing old friends, and making new ones, even though I was in a mind-muddle.
My thoughts are with all of you, along with my best wishes (sounds so trite, but true) in your, our, struggle.