15 years NED, Stage IIA

Posted By
JennerFromIowa
9/12/2017 2:38pm
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Replies: 6

Hi Everyone,

Haven't posted for quite awhile.  Hope all are doing well with NED or fighting strong.  This week is my 15 year anniversary with NED.  I am so grateful to all the people on this board who generously share their experiences and knowledge.  Don't know what I would have done without you.  Cheers to all and a rum and coke in memory of Kim from Iowa.  Still think of her and sorry we didn't get to meet in person.  Stay well all and fight the beast with all you've got.  Peace and love, Jenner

iskitwo - (9/13/2017 - 11:41am)

congrats to so many years of NED. Always good to hear!!

Fifteen is fabulous and I hope it's forever. Thank you for sharing this and best wishes always!!

Barb

miramira - (9/14/2017 - 6:35am)

Awesome!!

It's really nice to have someone such as yourself come back and post good news so many years later. I'm afraid, that too often, new folks coming in here only see those who progressed... because we're mainly the folks still shopping for experiences/advice. It can skew things to appear that everyone eventually progresses. It's great to see someone come in and let people know, that you really can remain stage 1a long term! CONGRATS! : )

Thanks!  Very true!  A lot of people who are and have been NED for a long time are out living life and not posting anymore.  Sorry about that.  It is good for everyone to know that not everyone progresses.  Not that it still couldn't happen to anyone but we all know that there is no rhyme or reason to why some do and some don't.  Prayers for everyone fighting this nasty beast!