Another question already! I was told I do not qualify for zelboraf because my BRAF gene is "abnormal". Again, that happen to anybody else?
what do you mean 'abnormal'...give us the results...is it braf v600e or k? or wild type?
did you get tested for other mutations like ckit?
what have you tried so far?
don't back up, don't back down
Don't think they meant abnormal.Braf is either positive or negative.Zelboraf will only work on patients who have tested positive.If you are negative it is not a course of treatment.Find another course of treatment.Prayers go with you. Al
"abnormal" is the term they used. Im positive for the gene mutation, but it isn't the same as everybody else's. My onc did his very best at the big symposium last fall to find a center that had run across, but, alas, no one had seen it before.... I will ask again Friday.
I can do all things through Christ who strengthens me.
I have a BRAF mutation, G466E. Maybe that would also be what your doc calls 'abnormal'. It doesn't qualify me for any of the BRAF inhibitors, which all target the V600E or V600K mutations as far as I know.
2 primaries; lung/brain mets in past; paratracheal lymph node currently; participating in Opdivo/Lirilumab trial
I will take that piece of info with me when I see onc. On Friday. Thanks very much!
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