Dear Friends: I went to MDAnderson and met with Dr. Hwu (the female one). She was very nice and knowledgeable, but I'm still a little lost and confused:
1- After 1 year of I-feron can I be eligible for IPI OR B-Raf/PLX IF my numerous lung nodules are "small"?? largest was 6mm? ie.: CAN I get ANY treatment without "histological Proof" that nodules are indeed m.mel.? Dr. Hwu has said that until nodules/tumors grow to at least near 1cm. in size, an accurate biopsy/VATS/or even "open chest" surgery cannot be done......and NO treatment administered until this is done.
2- She suggested that the nodules could be sarcoidosis. Anyone else with 8 or more nodules- some growing- been "luckey" enough for this to be the case?
Thanks in advance for any suggestions or first hand simular experience. I read y'alls' post every night and hope & pray for all. This disease sure does suck and I realize I'm blessed to be here.....I just feel like i'm being told I've gotta wait till further progression before i can be treated.
Love, Hope, and Peace-