It has been about 5 years since I have used this site - a lot has changed.
Currently I am upset and confused and would like some feedback from this community to help ease my heart/mind.
My initial MM occurred in my upper back in 2001. I had a local met in the skin just below the initial site and 1 lymph node with a very small MM. I had an axilla dissection and then about 6 years later I had a very small subcutanious lump taken out of that same dissection site that was also MM. I had radiation and nothing has happened to that axilla since - I call it my perfect armpit since no hair grows there anymore :-)
About 4 months ago I suddenly had a lot of pain in my hip/buttock - to the point that I couldn't really sit without discomfort. It felt like I had a muscle knot in that area. The pain went away and then it came back again about a month later. Again, the pain went away. Then at the beginning of June I felt an enlarged lymph node in my groin - it popped up suddenly and was very painful. I went to a GP who put me on anti-biotics. He left the "muscle knot" on my hip and thought it could be a lipoma so he sent me for an ultrasound. The ultrasound said that the "knot" was some kind of vascular tumor.
My oncologist thought the "tumor" was also just a lipoma so he sent me to see a surgeon. By the time I got to the surgeon, the skin above the "tumor" had become very inflammed, red, swollen and very very sore. It was like a band of pain that went from my hip to the lymph nodes in my groin.
The surgeon thought that it looked very much like an infection of some kind. He put me on Keflex which helped with the pain and the redness has gone down a bit and the lymph node is no longer sore.
In the mean time, I had a regular appointment yesterday with the oncology surgeon who took out that little lump in 2008. He looked at the lump on my hip and told me that it is probably melanoma - which he said is likely a met from the very first one on my back in 2001!!!!!! WHAT!? He did a needle biopsy and I have an MRI on Friday and then get the results on Tuesday.
I am very confused. Has anyone else every had a MM that got inflammed like an infection and responded to antibiotics? How could my first MM travel down to my left butt/hip without leaving anyother pieces in other pleaces - all my scans and blood work came back normal late June. How could three other doctors who all knew my history, not think that this lump is melanoma. I don't know what to think. I am going crazy. It if is MM, it is very big compared to the other ones I have had, and now there is lymph node involvement. I don't know what to do. The two different surgeons seemed to both be so sure about what they think it is, but they both think it is something different.
I am so upset. Please send me your thoughts.