Hi all - I was diagnosed with Stage IV Melanoma in the lung unknown primary on 3/11/14. I was mis-diagnosed in July 2012 with a carcinoid of the lung which was removed 10/31/12 via lobectomy and declared cured. Several follow-up x-rays were clear until 1/27/14 when two nodules on my left lung were found measuring 13mm and 6mm, respectively. Lung needle biopsy came back as melanoma. The 2012 nodule was re-tested and came back as melanoma. So.... I have been Stage IV Melanoma for almost 2 years with no treatment other than surgical.
I am meeting for the first time with a surgical oncologist this Wednesday (Dr. Jakowatz at UCI Medical). I expect he will recommend surgical removal of the two newer nodes but I am not sure I want to do that. Recovery from the last lobectomy was brutal and how much of my lungs can I have removed and still breathe? Also, since it is malignant, won't more nodules just keep showing up?
Has anyone on this thread taken an Alternative approach to their disease with any success? Drugs that stimulate the immune system scare me because I am currently deaf due to an over-active immune system. In other words, my immune system is very stupid and attacks healthy cells and ignores cancer cells. Super-charging it, who knows what it would attack.
Just curious if anyone has pursued Alternative treatment.
Maggie - Stage IV (lung mets unknown primary) since July 2012