The end of the road

Posted By
MaPerny
4/20/2017 9:35pm
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Replies: 16

Yesterday, I lost my soulmate, Juan, and my son lost his Papa.  After 4 years fighting this awful disease, he reached the end of the line.

The pain is raw and recovering from both losing him after 30 years of marriage and the toll of being a caregiver for such a long period will not be easy. But it was my pleasure to care for him over these years through multiple surgeries, radiation, chemotherapy, immunotherapy and TIL.   If I made it a little less painful and easier for him to cope with in any small way then my job was done.

I would like to thank everyone for the advice and encouragement.  I see so much hope for the future with new treatments and progress every day, just too late for us.

good luck and god bless

Maria

momof4boys - (4/20/2017 - 9:58pm)

So sorry... it seems lately this beast has taken several people on this board and Im at a loss for you, except to pray to God for strength. You have to be so tired. As hard as it is to go on, take some time for yourself and in time you will remember the old Juan, not the sick one. And someday you will meet again.

jennunicorn - (4/20/2017 - 10:09pm)

So very sorry Maria. My thoughts are with you and your son.

Jenn - stage IV - Ipi/Nivo (Yervoy/Opdivo); Completed a year of infusions and surgery to remove last tumor

Fen - (4/21/2017 - 10:55am)

I'm so sorry, Maria.  I think you did a lot more than make it 'a little less painful and easier for him to cope'. Deepest sympathy to you and your son.     

Fen

Cindyco - (4/21/2017 - 12:29pm)

So sorry to hear this.  Much love and prayers to you and your family.  You have been such an amazingly informed and inspirational caregiver throughout this.  I hate this disease.

Julie in SoCal - (4/21/2017 - 12:37pm)

Oh Maria!

My heart goes out to you and your family.  If only hating this disease were enough to rid the earth of it....

May your heart find it's rest in Juan's love. 

God Bless,

Julie

Stage 3c  (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, (intransits) 2013 IPI, (intransits) 2014 PEMBRO, (intransits resected in 2017)

Stage 3a 2017 NSCLunc Cancer VATs; Carboplatin & Pemextred;  radiation

Scooby123 - (4/21/2017 - 1:39pm)

So sorry Maria for your loss, sending hug and strength to you and your son. God bless❤️

Scooby

tschmith - (4/21/2017 - 3:36pm)

I'm so sorry to hear this.  May Juan rest in peace.  My thoughts and prayers are with you and your son.

Terrie

Maria C - (4/21/2017 - 7:26pm)

So very sorry to hear this news, Maria, for you, your son, and every weary warrior on this board. My heart and prayers are with you and your family.

Maria - Stage IV, MM, brain mets, responder to ipi/nivo combo

Bubbles - (4/21/2017 - 8:26pm)

Oh, Maria.  So sorry for your loss.  Jaun was blessed to have you.  I wish you healing and peace.  Yours, celeste

Shaneswife - (4/21/2017 - 9:37pm)

My condolences for your family's loss. 

 

Janis

snow white - (4/22/2017 - 12:16am)

Thinking of you at this most difficult time.

xo Jen

Jennifer-- Dad has stage IV Mel. No primary. Treatment: Gamma Knife,15 brain mets, Craniotomy to remove 3 large tumors in brain. Receiving treatment @The Angeles Clinic

adriana cooper - (4/22/2017 - 12:48am)

Maria, We are sorry  to hear this. It hits us especially hard. Please give yourself and your son a hug from us. 

Rob and Adriana

Adriana

MaPerny - (4/22/2017 - 5:58am)

Hi Rob, 

sorry I haven't replied to your email yet.  I was so pleased to get it.  Things just got away from me......

Maria

Patrisa - (4/22/2017 - 3:27pm)

Dear Maria,

Iam so sorry for your loss... Prayers for both you and your son...

Love,

Patrisa

jbronicki - (4/25/2017 - 2:52pm)

I'm so very sorry to hear this Maria, you and Juan have my deepest sympathy.  You were a tremendous caregiver to Juan and that says a lot about you, that's one of the hardest roles and you did it selflessly.  Many many hugs.

Jackie <3

Momofjake - (4/27/2017 - 9:54am)

Maria, 

Just wanted to say thank you for sharing through all this. So sorry. I think your friends here understand better than most the heartache of melanoma. Praying for comfort for you and your son. 

With affection,

Kerri