MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Need Direction...latest & greatest

Hi guys! I'm always hoping to post something good and I'm just not getting good news. So brain MRI results showed 3 new leisons. All of them are small. Biggest is just under a CM. My LDH is now up yo 1770 and platelets at 513. So TIL is postponed so I can get gamma knife Tuesday. I'm still going to MDA on Wednesday for CT Scan and another biopsy. Anybody want to show up and punch me in the face? I'm getting scared here guys & gals. I'm more scared of possibly having to have " the talk" with my 13yo son and 10yo daughter. I can take this crap but those thoughts of them....

NEEED OPINONS on switching OPDIVO for BRAF/MEK

A little bit of a background. My dad was diagnosed in July with stage 4 melanoma in July. 13 metastasis in the Brain. Ranging from 2 millimeters to 15 millimeters. He had WBRT and scans have been stable with some improvement on the latest scan. They have been suspecting a met in his abdomen as well which on the latest pet scan had shrunk. It has been about 10 weeks since he started OPDIVO treatment. A week ago he had his fifth infusion and started experiencing some mild or diarrhea. He was hospitalized and put on 60 milligrams of prednisone. The diarrhea has now cleared.

NY Times Article and DON'T EVER EVER GIVE UP.

HI Everyone,

Does anyone have the link to the NY Times article someon posted here a few days ago. I can't find it. Grrr.  

I was on this site for many many years awhile back.  I could not have gotten through those tough times without it.  I am  a stage IV survior and I would like to say to each and everyone of you. what my doctor said to me many years agol

Carole , don't pay attention to Statistics.  Noone can tell you how they arrived at them or how old they are.  

Carole, just because someone else didn't  make it doesn't mean y9ou won't.  

Mr. Potato Head

I have a question for you all. Does anyone have experience with sub-q’s popping up on the scalp? My primary was on my scalp, and recurred twice. I have a sub-q on my shoulder, which appeared quickly, but isn’t growing rapidly. At this point maybe 1.5 cm.

However, I have about a half dozen new BB-sized lumps on my head. They aren’t inflamed and really just feel like BBs just under my dermis. Two of them are tender, the rest not. But who wants to have lumps on their head (then again who wants to have this damn cancer in the first place)?

Follow-up to Lung nodules found on CT

I had a PET/CT scan yesterday, my R. ordered a Cat Scan guided biopsy and I am waiting for an appointment. I will follow up with those results. Im really disappointed, I thought the PET/CT would offer definitive results as to malignancy.

New Non-Invasive Melanoma Test?

I had an annual skin check recently and the doctor saw a large, flat, slight disolored spot on my face that has been there for many years and has been examined annualy by dermatologists (not this one) for many years. There has been no apparent change to my knowledge. No one ever recommended biopsy. This doctor said there is a new test by Dermtech. This test examines for gene expressions related to melanoma. The test involved using several pieces of special adhesive tape and putting them on and puling the off the spot.

Taf + Mek + WBRT

Just a quick update. My hubby started whole brain radiation therapy yesterday and the doctors called today to inform that hes being put on taf plus mek in addition to the wbrt. We have to wait for insurance pre-approval to go through, but Novartis is going to give us enough to get by for a month in samples. Feeling pretty grateful.

Need some opinions from others please read my story

In Nov 2015 I was diagnosed 3 b melanoma on back. SLNB and CLND under armit done. Things were going fine until I noticed a small freckle on my scar area. Hard to tell if its on it or near it the way it healed. Went to derm and had it removed. The pathology came back as melanoma in situ. My dermatologist told me she never seen melanoma that small and sends all the samples out to a dermapathologist.

Need some opinions from others please read my story

In Nov 2015 I was diagnosed 3 b melanoma on back. SLNB and CLND under armit done. Things were going fine until I noticed a small freckle on my scar area. Hard to tell if its on it or near it the way it healed. Went to derm and had it removed. The pathology came back as melanoma in situ. My dermatologist told me she never seen melanoma that small and sends all the samples out to a dermapathologist.

New mole very nervous

My dad was diagnosed with a melanoma in situ on september. We are back with the DR and now he had another black mole removed, and we are waiting for the results. Hopefully its just displastic, I just wanted to get it off my chest im really nervous
Love

Aida

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