MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Experiences please...Carbo/taxol..prednisone anyone?

Hello,

Last results shows my father has progression :-( more mets to liver, one spot to lung. So far tried keytruda, biochemo and now dr says carbo/taxol. Did anyone got good results from carbo/taxol? Is it very brutal?
He is in pain and I need your opinion allso on prednisone. I read that it supresses the immune system and we dont need that, but... Anyone has expirience? Does it help and how much you take? How long?

Thanks for any suggetions...
Best wishes to all!

Kind regards,
Ivana

Keytruda Cough Anyone?

Been on Keytruda  January of this year. Caught a virus two weeks after 1st. infusion. I have had a productive cough with bad taste ever since. Just wondering if anyone has had this as a side effect? Cough is listed as one...

Best,

Paul

Worsening during treatment?

I received my pet scan results yesterday and they were bad. Multiple mets in neck, liver, lower abdomen, pelvis etc. The SUV was around 4.00-5.00. My prior pet scan was clear on Feb. 29. I had lymph node removal in March in the left groin with 6 showing metastasis. I started yervoy and radiation on May 26 and due for my 4th ipi treament next Thursday. 

I did have the satellite tumors pop up and the sub q's that were purple. Most have disappeared. I see the melanoma Dr. and surgeon next week at Duke. 

Just a few questions:

Purple/brown spot

Hey guys, I have noticed a bright purple/brown spot on my chest. It bled a little a month ago then never anymore. It seems to have remained the same, but could it be melanoma? Or else, what could it be?

 

Thank you!

The Abscopal Effect

Pretty interesting article on the abscopal effect and work being done on trying to figure it out.

http://www.pbs.org/wgbh/nova/next/body/abscopal-response/

Small new Met shows up 10 days post infusion new area

Hello! So my mom went to the Drs today.. they decided no infusion based on the rash.. the rash is pretty severe.. they all looked a little shocked.. purple like bumps all over legs and back and some on arms. Also revealing itself was a small purple hard like mass on the arm pimpke sized (her original site is leg). Has anyone heard of these little mets showing up with therapy? They said for now  no biopsy they will just monitor. Was not expecting that part.

Thanks!!!

hospital time

Starting last Friday up through today I have spent the better part of every day (except Tuesday) and one overnight in the hopital. My poor husband has been with me every time and so has missed much of his work week as well. Hoping this trend doesn't continue.

Here we go again

I had a Stage 1b melanoma removed in October followed by a WLE and negative SLNB. I have been going to my dermatologist every 3 months. Last week she noticed a mole on my back that looked a bit inflamed and removed it for biopsy. She thinks it's "nothing", I heard that before! Lol! But, with my history she removed it. I keep reading that inflammation is a sign of melanoma. Is this always the case? And if it wasn't pink around the border 3 months ago, shouldn't be anything too advanced if it is, correct?

Hello...I'm new

Hello everyone,

My name is Stacy and I'm a 51 year old male that was diagnosed with melanoma back on May 24th. The original pathology report from my Dermatologist came back stating Clark's level IV, 2.37mm with no ulceration on my right knee and malignant melanoma in situ on my right neck. My chest xray is clear. I live in Kansas City. I went down to MD Anderson on June 22nd and met with Dr. Royal for a second opinion. Both Dr. Royal and my Surgical Oncologist here at the University of Kansas Hospital Cancer Center believed that my right knee identifies more as stage two.

Major rash.. Trial of Opdivo and epacadostat

Hello.. My mom had her first infusion 11 days ago. She felt fine till around day 9.. had some  severe cant move nausea (seems to have lifted as she is holding on pills) and bad fatigue and a very angry looking rash on her legs and arms. She is using a topical steroid and claritin. She is currently in a trial.. not sure if she will be able to get infusion tomorrow.. hard to think of her doing that with such a bad rash... and not sure what will happen if she does not get infusion..will she be out of trail.. the trial is good but its complicated feel this time pressure..

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