MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Melanoma Diagnosis Again

Had a small spot (less than a pencil head with some redness on my right shoulder in 2004.  GP said looks like nothing but referred me to a dermatologist.  Dermatologist said probably nothing or possibly basal cell.  Biopsy came back as melanoma.  Wide incision was performed and margins clears.  I don't remember the depth and my records don't go back to 2004.  Fast forward to January 2, 2018 - had my 6 months dermatologist appoint and once gain everthing checked out OK.  The next day I developed a rash over my left armpit - brite red.  I thought maybe heat rash so treated with some lotion. 

Taf/Mek

I have been on Keytruda with excellent results until recently. The melanoma has returned to both lungs, and I had internal bleeding/anemia. I am now back on Tafinlar/Mekinist...I took this medication in 2015 and struggled with high fevers. I was wondering if anyone has a success story to share with me about these meds..or any hints about how to deal with the side effects. .I am discouraged right now....Also, Ivam wondering if I will ever be a candidate for immunotherapy again??? Thank you for the help. 

Taf/Mek

I have been on Keytruda with excellent results until recently. The melanoma has returned to both lungs, and I had internal bleeding/anemia. I am now back on Tafinlar/Mekinist...I took this medication in 2015 and struggled with high fevers. I was wondering if anyone has a success story to share with me about these meds..or any hints about how to deal with the side effects. .I am discouraged right now....Also, Ivam wondering if I will ever be a candidate for immunotherapy again??? Thank you for the help. 

Opdivo treatment #2

Hi All:

I had my second Opdivo treatment, this time in 30min. Thursday April 19, 2018

Went very fast, stopped at grocery store on way home, once Home Had some dinner than fell out.

fatigue was way worse than my first treatment,  

went to sleep at 6:30pm Thursday untill 1130am Friday only up a few times for bathroom and meds (17 Hours)

once up, drank some coffee and got a bangle, fell back to sleep at 1:30pm and sleep till 7:00pm. Got up feeling sick in stomach for about an hour but gone now.

Cmp001

Has anyone participated in the cmp001/keytruda combo?  

Great Result, Grateful to Ratties

My husband--73, diagnosed Stage IV in January with brain, lung and liver mets--and treated with CyberKnife and Nivo--just had his three-month follow up PET-CT scan, and the lung and liver mets are gone.  Gone!  Still working on one pesky brain met.  We left the doctor's office so happy, of course, and also SO GRATEFUL TO THE RATTIES who helped bring these drugs to those who need them.  I know that includes many on this board.  We know the road ahead is still so uncertain, but tonight we're popping a champagne cork and saying a thank you.  V.

Lymph Nodes

Diagnosed with stage 1b melanoma,  Keepjng an eye on my lymph nodes.  I thought my dermatologist told me that a swollen lymph node, with a pea size knot, would not be sore. Does anyone know if this is correct?  I have a sore spot on my side where my bra fits and I’m wondering if it is a bad fitting bra or if something else is going on. Thoughts?

Vision Problems on Opdivo

I’m  having an MRI of my brain today. I just had my fourth Opdivo treatment and I’ve been having some problems with blurry vision and dizziness and it’s worrying me a lot. Has anybody on Opdivo had vision problems or dizziness as a side effect? I’m really hoping that it is a side effect and not something worse! I’m trying not to worry too much because I know I won’t get any results until next week, and I don’t want to freak out all weekend!

Malignant Melanoma Neurosurgeon and unconventional help

We are looking for:
- recommendations on Neurosurgeons specializing in Malignant Melanoma lesions in the brain.
- Any stories, advice, conversation about medical alternatives to a possibly inoperable brain tumor in Stage 4 Mailgnant Melanoma

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