MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Atypical Spitz Nevus

Hello,

     I want to see if anyone might have any advice for me.  I am a 33 yr old fair skinned female, who visited a dermotologist (for the first time) last month after noticing a weird mole like thing on my calf. The derm did not know what it was, and did a shave biopsy.

Recurrent

Hello All, 

  I originally was diagnosed with IIIA SS Melanoma of the left leg with 3 microscopic cell ins in SN, completed the full 52 weeks of InterferonA and have been NED since 2010, unitl now. I found a 2cm lump where I had a RLND and my Oncologist is sure this is recurrent Melanoma. Ultrasound of the mass shows it to be 2cm. I have not had any other testing as of yet or scans for the last 3 years. 

Question on my scan results

Hi everyone, what does nodular appearing mean?...Isnt a nodular a nodular?..are their things that look like a mass or nodular but its just something else?  Has anyone come across this before?..Thank you!!

1.  No definitive evidence of metastatic melanoma within the abdomen or pelvis.
2.  Nodular appearing left adrenal gland and nonenlarged but prominent mesenteric lymph nodes are seen, these findings are nonspecific. Attention on future follow-up imaging is advised.

Hello to All

I've been lurking w/o registering for about a year now so decided to finally "show my face".

They recently changed the way they do patient info on my centers website so I'm still figuring out how to access it all.

My first run in with melanoma was in the mid to late 80s when I had an area excised over my left shoulder blade. I was never staged as far as I know and I remember they injected me with a dye that was the made from the shell fish flamingos ate that made them pink.  I was told no problems and life went on.

Question about Keytruda

My son was 18 when he was diagnosed with Stage 3.He started Keytruda 5/3/2018.He will be getting his 11th infusion on Oct.22.They did see a few lung nodules on his 3 month scans that were 2mm and 4mm.They did not show up on his orginal Pet scan so they do not know if it was there or new.His six month no change in nodules.Im really worried for him.A lot of people told me lung nodules are common and may not mean anything.But how would a 18 have lung nodules.Has anyone else experienced this and do you think the Keytruda stopped them and will kill it?

So much for pembro, no longer stable

Well my stable status was short lived and frankly probably never even existed in the first place, they just weren't looking in the right place.

Liver scan

Sorry this is a little long... I have never posted before but have found this group very helpful since my diagnosis.

I was diagnosed in January with stage 3 melanoma with unknown primary. I had a large lump under my arm which was biopsied. I then had an axillary lymph node dissection. My initial pet scan had, what my doctor called, "some minor areas" that lit up but nothing was enlarged so it could just be physiological activity and that they would be treating me as NED - adjuvant treatment of taf/mek, but I couldn't tolerate the mekinist so now I'm just on tafinlar.

Approaching 4 years after in situ

Hi to all. Prayers to everyone and only Have positive thoughts, pls  

White 40 y/o  male diagnosed in situ on my back with clear margins almost 4 years ago.

I am going to see my dermatologist next week for 6 month check up. For some reason I feel more nervous,  more time goes by, more  nervous I am . I visit this forum once in a while, and some people went from in situ to stage 4.  Is it really possible?  If yes, how much time?

Thank you all.  Be strong!

Braf testing

Hello Friends:

Can someone help me understand the significance or lack there of of being BRAF negative or BRAF positive as it relates to melanoma prognosis.

Sending hugs to all.  Thanks in advance!

Susan

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