MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

ASCO Update from Dr. Weber

Some good results presented by Dr. Weber in a short Video for Adjuvant therapy, new targeted therapy drugs and long term Pembro patients keynote 006 data.

Time for an Update

Had my appointment with my oncologist this afternoon and the results were that the disease is stable with no new growth. Unfortunately what was still there currently remains but its wonderful knowing that it isn't growing.

Still Wearing My NED Badge!

Hello friends!

I wanted to update that my CT and brain MRI on Monday were very unremarkable! *NED dance*

Another 6 months of "regular" life ahead... well, sorta... in 3 weeks I will have surgery to repair a torn meniscus and remove a cyst it created in my right knee, so that's not going to be too fun. I'll be stuck at home recovering on disability... it's funny because I never had to go on disability or take much time off during all the melanoma madness. Hopefully after healing and rehab I'll be in a lot less pain!


Sending good vibes to you all as always

I'm scared, flaking mole

I've got this mole since I can remember (I'm 22) and I noticed black top layer of mole has flaked off and under is raised very dark brown mole. Is it melanoma? Why the top layer flaked off?

New here -- just had my 5th Excision for melanomas

Hi.  I am new to this board.  I feel a little nervous lately.  I just had two stage II melanomas excised off my right leg.  My poor right leg feels picked on. 

Changing mole- dysplastic Nevis

I have had a mole on my wrist for years and over the past two months it looks like it's spreading. My GP wasn't too concerned but sent me to the dermatologist just in case. Upon looking at it he says it is most likely to be a dysplastic Nevi. I thought these were moles that appeared aytpically. Can normal moles change into atypical moles without being cancerous. As it is so small less than 1mm and in an easily viewable place not to remove it. However it was still spreading between first appointment and referral and so am worried it could be worse.

Great update



Hi Everyone:

my wle and slnb experience

Hi, Not sure what happened, i will know more Monday with my follow up.  But as of right now i feel someone up above is looking after me.  My melanoma was at least 3.8mm at least stage 2A...T3 to T4.  They canceled my SNLB before they cut me open because the pre screening indicated I didnt need a Sentinal Nobe Biospy.  The surgeon performed the WLE and that was it.  

Mirarcle as far as I know with  the circumstances considering the size alone of the melanoma.

Did someone else here have the same experience??



WLE Tomorrow, June 21. First ever

Hey everyone!
I'm having my first ever WLE on my abdomen tomorrow and I really have ever no idea what to expect. The surgeon held his thumb and index finger about 4-5 inches apart and said " your scar will be about this big". He acted like this isn't a big deal. He is doing it in his office. I wasn't nervous until now. Is it more of a thing than the dr acted like?