MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Update on Jerry

There's an update on Jerry on the otbb.  He is making progress.

 

Jackie W

Do People Survive This?

Hi.  My name is Monica.  I'm 33 and was diagnosed on July 13th of this year with malignant melanoma from a mole that was removed from my lower leg.  Last week I had a sentinel node biopsy and am now awaiting results from that to see where we go from here.  The waiting since the initial diagnosis to now has been unbearable and I have another 3-4 weeks to wait for results.  I just need a game plan.  So far I have found this disease much more scary and tiring from a psychological perspective than a physical one.  I feel fine.  My blood

Scans tomorrow

Tomorrow I take  Will to Rush to have scans - the first since he started this treatment.  He's had two rounds of chemo.  I know all of you know exactly how I feel, so I won't bother going into the gruesome descriptions : (   We are staying overnight near the hospital, at Will's request, and then going back Tuesday to have the scans read, and God willing, more chemo.

XL 184

Hello Has anyone tried this new trial drug

Hey Sharon in Reno

You haven't posted in a week which seems untypical of you.

Are you alright?

IL2 success stories?

Hello everyone. I had stereotactic radiation done yesterday, hopefully took care of the met in my brain. As for the ones in my lungs, liver, chest and back, I will be starting IL-2 on monday. I'm a little scared, a little nervous, with all the possible side effects, but have got my hopes up for the possible help it may bring. Has anyone here had a positive experience with IL-2? Any recommendations or tips I might benefit from? How about nutrition while on it? I've seen the operationsunshield website, but would appreciate any other opinions or stories. Thank you.

Multiple Subjects

Hello everyone. Just an update. I had stereotactic radiation done yesterday, hopefully took care of the met in my brain. As for the ones in my lungs, liver, chest and back, I will be starting IL-2 on monday. Scared? Yes, I'm kind of nervous, with all the possible side effects, but have got my hopes up for the possible help it may bring. Has anyone here had a positive experience with IL-2? Any recommendations or tips I might benefit from? How about nutrition while on it? I've seen the operationsunshield website, but would appreciate any other opinions or stories. Thank you.

Question on treatment and subcutaneous mets

I wondered if anybody might know how many treatments of chemotherapy one might require before finding out if it is reducing the size of subcutaneous Mets. I have only had one infusion so far and obviously won't know what effect it is having on the tumours in my organs etc until I've had a scan after my second infusion. However, obviously one can one can see subcutaneous mets and I thought others may have seen some signs of them reducing in size after treatment, but didn't know how long this usually takes. Any information would be appreciated.

Loneliness and Melanoma?

Just wondering if anyone else has encountered these same type of feelings.  Before being diagnosed with Stage 3 Melanoma I moved across the country away from all of my family and friends with my new husband.  Being in a new environment, not feeling quite myself, I have found it so difficult to make friends my age (I'm 29).  I find that many women my age are dealing with such different things like starting their families, etc.

Recommended Tests

Sept 2009 I was diagnosed with stage IIB melanoma, 11 mm deep but not ulcerated removed from mid back, margins clean.  SNB was not performed as the doctor assumed lymph node involvement given the depth.  Whole body PET scan and sonogram of suspect lymph nodes at neck and arm pit were clear.  Because my insurance ruled this a pre-existing condition I could not afford the recommended adjuvant interferon therapy and opted for watchful waiting.  Coming up on a year now with no articulable symptoms of recurrence or remote metastases which brings me to the subject.

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