MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

WBR improvements

I have been so out of it for the past month.  bedridden, throwing up, double vision, siatica nerve in bsck snd neck with seizures.... 

Anxious for changes!  This week everyday there have been imptovments.  Today I sat at the dinner table with my family!  a major triumph!

MRI showed radiation it has shrunk the 2 large tumors. No new growth on the chest tumors from before.   Now we wait for a month and see if more it dies, ince I am seeing healthy improvements now.   (Last 4 days I have seen improvements with my left side!)

immune cancer center?

Has anyone heard of this place in the Bahamas? Any takes on it?

http://immunemedicine.com         - here's what they say..

"At the Immune Augmentative Therapy Centre we have been working to find the best therapies available to restore your immune function since 1977. Lawrence Burton Ph.D. opened the IAT Clinic in Freeport after his many years of successful research therapy in the USA on the immune systems of hundreds of terminally ill cancer clients".

3 years 1 month NED!!!!!!

CT of Chest Abdomen Pelvis all Clear

MRI all clear

I feel like a little kid again getting excited by numbers going up!

Hang in there and Fight Fight Fight!

New Mek trial

Well this past Tuesday Brent started his new MEk trial at MD Anderson.  He was on  GSK Mek for 14 months and started to progress.  So after a mistake in the insurance approval, and not getting the right information about B-12 and folic acid prior to starting the trial, he finally started.  He is on MEK/Alimta combo trial.  Alimta is a drug approved for lung cancer that they are combining.  He feels well today but is sleeping more than usual.

Sharon and Brent (stage IV)

2007 Melanoma under toe nail and lymph  nodes in groin

Just a fast question....

I have had 2 melanoma findings in the past 3 months.  I have a teriffic doctor and he caught them early, both were Stage I (back and leg).  I went for my 2 month checkup and they found 7 moles that are suspicious.  Biops. were taken and I am waiting on the results.  They said this is very rare....but said no more then that.

 

Does anyone have any thoughts?

Thanks...

Just a fast question....

I have had 2 melanoma findings in the past 3 months.  I have a teriffic doctor and he caught them early, both were Stage I (back and leg).  I went for my 2 month checkup and they found 7 moles that are suspicious.  Biops. were taken and I am waiting on the results.  They said this is very rare....but said no more then that.

 

Does anyone have any thoughts?

Thanks...

Legal Question

Can your health insurance cancel your policy if you move out of your state (just across the border) and the state would be NY

Thank you.

Lymphedema?

We're about  4 weeks out from Don's biopsy/lymphectomy and this morning he got up and his right arm was swollen. He said he was a bit more sore than normal also. It's important to note that he is not yet receiving any treatment for the Melanoma because they are still staging him. (He goes for repeat PET on Friday 4/29 and his next Onco appt is Friday 5/6)

Confused - Stage 4 Treatment Options

March 1stI had melanoma confirmed in my lungs.  For the last 6 weeks I’ve been trying to get qualified for a B-RAF trial.  The good news is that I found out (thru a whole list of waiting and errors) that I am + for the mutation, but my April scan didn’t show enough “active measurable growth” to qualify for the trial.  Now I know I should be doing some sort of happy dance for that statement – but I guess my guard is still up!   

Lots of survivors out there who don't post here

Hi everyone! I just wanted to remind anyone who is feeling depressed or hopeless about melanoma that there are so many melanoma survivors out there beyond this board (but I do love the survivors on this board :)). Either they don't know about this website or they are just off enjoying life so they don't come here to post, but they do exist and they exist in masses!

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