MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Roche/Plexxikon BRAF (PLX 4032) Compassionate Use

This drug has had a lot of press over the past several months, based on strong results from a small, early trial.  Today the data for larger trial were released, and here are the key points: 

--this drug is used only for melanoma patients who have mutated BRAF, about half of all melanoma patients

--about 53% of people who receive this drug have a response to the drug (vs. 14% for IL-2, for example)

--average duration of response is between 6 and 7 months

Vulvar Melanoma and Aldara

New subscriber looking for anyone who can relate to vulvar melanoma or who has had experience using aldara cream??

Fall Symposium - Boston sponsored by Melanoma Foundation of New England.

Hello All,

I've attended the past few symposiums presented by the MFNE and found them excellent resources. 

Jerry from Cape Cod.

Newly diagnosed young mommy... finally joining board

So sad to be joining this club...

trial

Anyone on E7080 w/TMZ ?

Lauren-how's jenna doing!

I noticed that Lauren has not posted for a long time. I pray Jenna is doing well. Anyone heard from Lauren???

Kevin (himynameiskevin-San Diego) how you doing, anyone heard from kevin???

I am concerned we have not from Kevin. Anyone know how he is doing, please post an update. I was so sorry to read his post about IL2.

Do Biopsy's spread cancer?

I came across a couple of articles on the Web that maintain that biopsys spread cancer.

This may be total quackery, but the argument goes that the body builds walls around concentrations of cancer cells to contain them, but that these walls become breached, and the cancer cells escape, when a biopsy is performed.

I am scheduled for a SLN  in a day or two , and these articles have given me pause for thought.  Any comments?

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