MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Another Ipi query: bleeding/weeping tumors

My husband is due to have infusion #4 next week & one of the sub-qs on his scalp has started bleeding with, to quote him "bits dropping off".  A lesion on the side of his chest also began seeping/bleeding this morning.  Has anyone else doing Ipi experienced this?  We're hoping it's a good sign as a couple of his other sub-q tumors aren't looking as "robust" as they were...

NEDDay/Birthday

Hi Everyone,

I am truly most humbled as this day marks the 5th year since my last surgery for recurrent melanoma.  It is also my birthday, so every year that passes is a true blessing.

I have had a little virtual party, of sotrts, going on at OTBB today and would invite anyone who cares to venture over there to do so and do a little reading.  My profile is under Kimmer or can be viewed by clicking on my name.  I only direct anyone there in the interest of offering hope.

Hope can overshadow any of our fears if we just surrender to it.

Follow up on Amy Busby

Brent and I are in Houston for MDA, and had the opportunity to spend time with Amy.  She looks and sounds great, we went out to eat and a little Easter shopping.  She is dealing with a lot of pain and gets tired, but she enjoyed getting out of the house.  Her battle has been long and she has had to be an  advocate  ( doing her own research work )as well as the patient, and a mom, while Dennis works,  not easy...... 

She is doing Hospice and finds that helpful.

Need thinking caps

Hi, we are sitting in Houston waiting on a trial to start on Tuesday,  MEK and Alimpta,  Brent has been on MEK alone for over 15 months and the last scan showed some growth.  He is Braf negative!  When is it discussed everyone they just scratche there head.  No one understands why or how.

Hello, an NIH "ACT" update...

Well, it's midnight, I just got home from a long day of shuttles, flights and airports. But before I lay down to sleep, an update:

It's official. IPI Non-Responder!

Just got back from UCLA with my husband.  Got the latest CT results after the 12 week IPI Trial.  All results point to Non-response.  Scans were compared to previous scans in Jan '11 and Dec '10.  Here is the technical stuff!  Hard to read.......

melanoma under a toenail

Has anyone been diagnosed with the above, and what did it look like?  My next to little toe is completely light purple under the nail and has been that way for several months.  It hasn't been bumped or anything.  Comments??

TEAMM4M Marathon Training Program

TEAMM4M is a marathon training program for runners committed to raising money for the MRF.

Want to run a full or half marathon?
Want to join the TEAM?
Know a runner who might be interested?
Learn more here or contact me at cedrington@melanoma.org.

Carolyn Edrington
National Director, Miles for Melanoma
Melanoma Research Foundation

Kris, My Wife

I just wanted to report that I lost my wife of 31 years to melanoma last Tuesday.  We started this battle 8 years ago, with acral melanoma under her

right thumb.  After several surgeries, the entire thumb was removed and we had clear scans for 4 and a half years.  Then a small lung met appeared.

That was removed early in 2010.  We had clear scans for about 9 months and then they appeared in her liver, hip bone and lungs again.

Scared and need support

My pathology came back, the wide excision of my chest wall came back clean, no cancer, but cancer was in my lymph node in my armpit. I met with my surgeon today and she's having me in for a PET scan on Tuesday. Then Wednesday she's doing surgery to remove the rest of the lymph nodes in my armpit. She said I will have an "S" shaped scar, and a drain, and I will stay overnight in the hospital. Drain will stay in 1-2 weeks, and I will see a therapist so that I don't get lymphadema in my arm. And I've been officially upgraded to a stage III.

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