MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Only sub-q mets so far

I’ve been stage IV now for a year, but so far with only small, randomly located sub-q mets (seven total). Anyone out there with a history similar to mine? So long as the tumor burden remains low my onco and I agree that surgery is the best therapy. Disease progression to internal organs is obviously a concern, but so far there’s no sign of that. Anyone else on this slow track? Did you go through IL-2 anyway? PeterO. 

Update: The Gambler's Brain Surgery

I promised you an update...

Just checking in

This has changed a lot since my last visit.Just checking in to say hello to all my old friends if any are stil here

Requalification for SSDI

I am stage IV and up for review with SSDI. I have been on SSDI since 9/07. After multiple surgeries and 4 clinical trials (GP100 vaccine, IL-2 and gene therapy trial all at NIH and then Ipi, here in Chicago) I am in remission and have been since 8/08. While the Ipi caused life-threatening complications for me I am now left only with Type 1 diabetes and thyroid disease as a result of the drug.. Also, because it is a non-FDA approved drug, no one can tell me how long the remission will last.

Brand New to This - Help me please

Hello ~  This is totally new to me and I am looking for answers, support, sanity, sleep, not all in that order.

Brand New to This - Help me please

Hello ~  This is totally new to me and I am looking for answers, support, sanity, sleep, not all in that order.

Brand New to This - Help me please

Hello ~  This is totally new to me and I am looking for answers, support, sanity, sleep, not all in that order.

"Good news"...

...the doctor said with a smile.

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