MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Combined BRAF-Targeted & ImmunoTherapy Shows Promise

Combined BRAF-Targeted and Immunotherapy Shows Promise for Melanoma Treatment

ScienceDaily (June 15, 2010) — Combined targeted therapy against the BRAF/MAPK pathway with immunotherapy shows promise as a new therapeutic approach for the treatment of melanoma, according to results of a preclinical study published in Cancer Research, a journal of the American Association for Cancer Research. 

New Treatment for Melanoma Liver Mets Safe and Effective for Advanced Melanoma Patients

New Treatment Method Safe, Effective for Advanced Melanoma Patients, Study Suggests

ScienceDaily (June 7, 2010) — Patients undergoing treatment for melanoma that has spread to the liver may respond well to chemotherapy delivered directly into the liver's blood vessels, according to a study sponsored by the National Cancer Institute and Delcath Systems Inc., and led by James F. Pingpank, M.D., associate professor of surgery, University of Pittsburgh School of Medicine, and surgical oncologist with UPMC Cancer Centers. 

Advances Toward Earlier Detection of Melanoma

From Washington University in St. Louis, MO -- where I was treated for my primary almost two years ago (Siteman Cancer Center, Wash U).... This technology is amazing.   Regards, Hawaii Bob

 

Advance Toward Earlier Detection of Melanoma

 

shifting gears - need urgent info on any fin. aid programs for Temodar

Now that my spinal fluid has been cleared up, my leptominingial mets are getting a bit worse (lining of my brain).  So Dr. Papa thinks I should do a 10 day course of WBR along with Temodar.  I was expecting that would probably be the results / recommendations.  Problem is how much of the T. cost is my insurance going to cover?  Hopefully I'll know tomorrow, but since I needed to start it tonight, we're already behind schedule.  Has anyone had any success with assistance?

shifting gears - need urgent info on any fin. aid programs for Temodar

Now that my spinal fluid has been cleared up, my leptominingial mets are getting a bit worse (lining of my brain).  So Dr. Papa thinks I should do a 10 day course of WBR along with Temodar.  I was expecting that would probably be the results / recommendations.  Problem is how much of the T. cost is my insurance going to cover?  Hopefully I'll know tomorrow, but since I needed to start it tonight, we're already behind schedule.  Has anyone had any success with assistance?

Proleukin patient summit?

Is anyone else attending this Proleukin patient summit in San Diego in Septmeber?  My doctor's nurse told me about it.  I agreed to attend and wonder whether I'll meet any of you there.

KatyWI

MacVac--4th shot

Well, I'm down in California today, and had my 4th injection of my Vaccine. Everything is going really smoothly. I took aleve at the same time I got my shot today and so far it's doing a pretty good job of stopping that BIG headache I usually get. The headache is coming on a little (it's on track timewise) but lacks the strength it has had on previous days.

So..only 4 more shots to go!

I'll be getting scans again toward the end of September, and hopefully I remain NED

Visit with oncologist gives hope

Dick and I went to his oncologist at Ma General today. As we posted he is 4 years NED from stage 4. For the very first time in the years we have been fighting this beast (2002-stage 4) the doctor was hopeful and excited. He said they are on the verge of so many break thrus. He said the anti-ctla 4 drug Dick had had 4 years ago was unknown back then but has become cutting edge. And Dick was in one of the original trials.  Our original oncologist whom we had seen in Feb 2003 had given us very little hope that Dick would be around in 5 years.

My best friend

My best friend and the love of my life lost his battle with melanoma on August 3rd.  I don't know whether to say it was a 12 week battle or a 26 year battle.  He was diagnosed with superficial spreading melanoma on his chest in 1984.  He was treated at the Pigmented Lesion clinic at Penn.  They did a WLE, no SNB was done.  He continued to be followed there until 2008 when they told him he didn't need to come anymore, just see a dermatologist every year.  He never had another primary lesion and we thought everything was good.  Unfortunately in May h

No longer NED

Today should have been my 1 year NED anniversary..... Received a phone call that the fna was positive for melanoma.  I discovered a lump on my arm about 9 weeks ago (yikes). Since we were in the middle of our move I went to the scheduled oncology appointment to meet my new local Dr. (this was supposed to be a meet and get to know each other).  She scheduled a PET /CT which came back clear.  We then moved on to a surgeon who measured it with an ultrasound.  Came back a month later and measured again. It grew a tiny bit. FNA which now came back mel.

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