MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

radiation burn, infection,open wound

If anyone out there has any information or been thru treatment for radiation burn and an open wound in a melanoma site, I would appreciate any help you could offer.  My Mom had a very large tumor removed in June in her inguinal canal which was a melanoma, probably metastasis from her big toe which was amputated 5 years ago. The surgical site healed very well. She has two other deeper tumors in her pelvis, that they have left alone as they said her quality of life would be affected. She chose not to do chemotherapy as she is 82 and did not want to feel sick with what time she had.

Srage Four - Diagnosed 4 years ago

Hi Everyone.  I haven't logged in in a long time.  I am here to reassure everyone that it can be done.  Four years after developing both lung and brain metastasis, I uave noevidence of active disease.  A few old, asymptomatoc  tumors still show up on scans but they have not changed in over a year.  I am "stable" and the prognosis that I will remain stable is very, very good.

 

If you wanr to read about all the treatments I have had I just updated my medical history on my profile.  Just search for Mark_Catskill.

Srage Four - Diagnosed 4 years ago

Hi Everyone.  I haven't logged in in a long time.  I am here to reassure everyone that it can be done.  Four years after developing both lung and brain metastasis, I uave noevidence of active disease.  A few old, asymptomatoc  tumors still show up on scans but they have not changed in over a year.  I am "stable" and the prognosis that I will remain stable is very, very good.

 

If you wanr to read about all the treatments I have had I just updated my medical history on my profile.  Just search for Mark_Catskill.

Eric n Jill Ohio-how are you doing??

So happy to see you are posting. How are you doing?I hope Eric's treatment is going well. Stay positive & good luck.

PET scan was clear

 So my husband was recently diagnosed stage IIc, did surgery and had his PET scan yesterday.  Found out today that the PET scan was clear!  I was so worried that something would show up.  It seems that melanoma never really goes away, but this is such good news for us.  He is going to attempt the year of interferon treatments and we'll go on from there.  I just wanted to share my excitement and thank people for their support on this board. 

Akilyn

25 months NED Stage 3A

I have never posted on this site.  Just posting that I have been 25 months NED since being diagnosed in August of 08'.   I wish all the best and hope for everyone who participates on MPIP.

Dave Bartels

Thanks and update

Hi All,

After almost 4 years on my melanoma journey (see profile) I've now gotten to where it's time to wait this out.   I'm set up with Hospice and have been working with them to manage the pain from my abdomen and leg mets.

I'm hoping to continue to lurk on the board for a long time, but I wanted to say now I am so thankful for all of the wonderful support, virtual hugs, emails, and conversations I have had with many of you over the years.   You've been my rock and inspiration many times.

Worried

Hello everyone,

I have Stage 1 melanoma history and recently had moderately atypical nevus removed by my plastic surgeon with clear margins. Yesterday I noticed a bluish line just in the middle of a scar. I am worried now about it: is it bruise, blood vessel or pigment???? Any thoughts? It drives me crazy...

Thanks!

Which Treatment Next following Ipi, Chemo?

Just returned home from looong 2 days of scans, bloodwork and office visits.  Wish I could say results were good but I'd be lying.  After 6 months of following the Ipi trial I hate to report John was definitely not a responder..... I really didn't need thousands of dollars in scans and bloodwork to tell us this. We kind of felt it all along.  I'm really not on here to criticize the use of Ipi.

Goodbye Mom

My Mom was diagnosed with melanoma in April. She had it removed in May and had 5 high doses of radiation. Everything was supposed to be ok or so we thought. Fast forward to Sept. 1st when I got a call that she had severe abdominal pain. Rushed her to the hospital where they did a cat scan and said they saw tumors in her intestines. She continued in pain until 9 days and so many tests later she went for another cat scan where a doctor saw that she had a hole and if she didn't have emergency surgery the toxins would go through her body and she would die.

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