MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

First appointment Monday morning for suspect spot on my face

Hey all!

33yo woman here with tons of sun damage from a misguided youth without sunscreen. My mom was a tanner and never taught me the dangers of sun damage or bothered with sunscreen, so when I became a lifeguard as a teen, neither did I. Tanning beds, deep suntans in the summer... and I'm a blonde Irish/Norwegian mix with red undertones in my hair, so almost as fair skinned as you can get.

Radiotherapy

Hey guys 

at the beginning of September my father had 6 treatment of radiotherapy in his mediastinum .

He was feeling quite well before it , but the night between the 5th and the 6th treatment started to suffer of severe dyspnea and atrial fibrillation .

All doctors says that is mainly due to his melanoma but before the treatment he was feeling pretty well and having a normal life . Now he is on cortisone and other thousand of medicine and he was forced to stop keytruda  and he feels always very tired with no energy 

Something to smile about

It's election time here in Connecticut and many voters are showing their preferences with signage on their property. Now, this post in no way represents a politcal endorsement of any kind, but every time I drive by a house with this sign in the front yard, I smile.

https://pbs.twimg.com/media/DkBBIfUUUAA7Mdd.jpg

Have a great weekend everyone!

 

Just an introduction

I can't say that its been the easiest year by any means.   We said goodbyes to my dad after a 16 month battle with pancreatic cancer, said good bye to my wife's mom in August after a 12 month battle  with pancreatic as well, and somewhere inbetween I was diagnosed with stage 3c melanoma.  The melanoma was found in an intra glandular lymph node in my left parotid gland.  I could go on in detail, but long story short it was found in another lymph node and the extra nodal extensions had invaded a portion of my neck muscles as well.

Moh's Surgery vs WLE

Any thoughts on using Moh's vs WLE for clearer margins?

Already had a excision for removing a legion which turned out to be superficial spreading stage 1a

breslow depth of .07 with /mitotic 1mm with no ulcertion

Power of prayer?

Has anyone gotten a diagnosis and not done treatment? My grandma is 91 years old and she has had breast cancer twice and just had her breasts removed she also had ovarian cancer. She hasn’t done one treatment because she doesn’t believe in it. Is the power of prayer a better cure than what’s out there now or is she just one of the lucky ones

Some help and guidance please

Hi

I am one injection away from finishing my interon treatment. That’s all that is available here for phase 3b. I am battling to understand what comes next?  Is it just scans and blood tests now for the rest of my life?

 

is there something I should look out for? What’s next for me do you just live with the uncertainty forever?

 

 Thanks Sherryl 

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