MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Needing some guidance please

Hi all-

 following up with my drs this week but really worried about what’s going on. I had stage I melanoma in 2005 and have been checked and healthy since.

 

for the last 2 months, I have been dizzy and fatigued. Ended up in ER in Feb- brain/neck MRI and chest X-ray normal, other than incidental findings of mucous retention cyst in sinuses and calcified nodule in lung. Noticed enflamed inguinial nodes 2 weeks ago and saw GYN yesterday. No masses seen but she is concerned w my melanoma hx and has my anxieties up. 

Suggestions For Gaining Weight

Hi friends! 

I am asking for my mom who just underwent D&C surgery and we're waiting pathology results. But, for the past 6 months she continues to lose weight, she is down to about 100lbs. So, I am trying to get some ideas of ways to help her gain some weight. She has an appetite, so the weight loss is a mystery right now and she is open to trying any easy meals or snacks that could help her put on a few pounds.

I told her to get ensure shakes, which she has been drinking but is getting tired of them.

Just a update and any advice

Hi all, 

After posting regarding keydruda and stomach pains. I ended up at hospital I have had bloods done at my GP the reason was for due to the fact I am on treatment, going through menapause and a thyroid issue I wanted to know if I could check my calcium, magnesium due to in my family all the females have developed oestoporosis when going through change. I just want to help keep me strong for treatment and any other help with my other issues. I do eat as well has can be.i do have oesteoarthritis which I devoloped in my 20is.

Didn't have SLNB procedure - have regrets now

I was diagnosed in Feb. and had the WLE. I was advised by one dr. not to do the SLNB during that time because it doesn't affect survival, plus beng so new to all this I didn't know any better. I wish now I had gotten the procedure because I'm always wondering what stage I am, among other things. I was recently told by my derm. surgeon I can still do it. Another dr. thinks it's too late. Has anyone else been in this situation? I'm wondering what I can do at this point as I don't care for the idea of melanoma possibly in my nodes.

Metastatic Melanoma Patients may benefit from Pan Beta Blockers (with Immunoteraphy)

Hello everyone,

I found a very interesting article and after sharing it with my oncologist, she added a medium dose beta blocker2 (pan beta blocker) (Propranolol) while i am having immunoteraphy. Pan beta blockers has almost no side effects and the potential benefit with immunoteraphy is really incredible. 

Melanoma Diagnosis Again

Had a small spot (less than a pencil head with some redness on my right shoulder in 2004.  GP said looks like nothing but referred me to a dermatologist.  Dermatologist said probably nothing or possibly basal cell.  Biopsy came back as melanoma.  Wide incision was performed and margins clears.  I don't remember the depth and my records don't go back to 2004.  Fast forward to January 2, 2018 - had my 6 months dermatologist appoint and once gain everthing checked out OK.  The next day I developed a rash over my left armpit - brite red.  I thought maybe heat rash so treated with some lotion. 

Taf/Mek

I have been on Keytruda with excellent results until recently. The melanoma has returned to both lungs, and I had internal bleeding/anemia. I am now back on Tafinlar/Mekinist...I took this medication in 2015 and struggled with high fevers. I was wondering if anyone has a success story to share with me about these meds..or any hints about how to deal with the side effects. .I am discouraged right now....Also, Ivam wondering if I will ever be a candidate for immunotherapy again??? Thank you for the help. 

Taf/Mek

I have been on Keytruda with excellent results until recently. The melanoma has returned to both lungs, and I had internal bleeding/anemia. I am now back on Tafinlar/Mekinist...I took this medication in 2015 and struggled with high fevers. I was wondering if anyone has a success story to share with me about these meds..or any hints about how to deal with the side effects. .I am discouraged right now....Also, Ivam wondering if I will ever be a candidate for immunotherapy again??? Thank you for the help. 

Opdivo treatment #2

Hi All:

I had my second Opdivo treatment, this time in 30min. Thursday April 19, 2018

Went very fast, stopped at grocery store on way home, once Home Had some dinner than fell out.

fatigue was way worse than my first treatment,  

went to sleep at 6:30pm Thursday untill 1130am Friday only up a few times for bathroom and meds (17 Hours)

once up, drank some coffee and got a bangle, fell back to sleep at 1:30pm and sleep till 7:00pm. Got up feeling sick in stomach for about an hour but gone now.

Cmp001

Has anyone participated in the cmp001/keytruda combo?  

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