MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Stage 1 -- but now a concerning brain MRI

I'm at a loss here on what to do.  My husband has had two primaries -- one along the mandible that was classified as T1b, and another in situ on the scalp.  He has gone for full skin checks every six months or more frequently ever since.

First round of scans done!

Hello friends!

I wanted to share some good news now that I have the results from my first round of scans since starting Nivo in April.

Brain MRI — NED

Abdomen and Pelvis CT — NED

Chest CT — the smallest lung lymph node nodule gone, the second lymph node nodule significantly reduced (now 2.4 x 1.5cm), the largest mass had a slight increase (5.1x3.5cm) but Dr. Kendra believes it to be pseudo progression from the immune cells.

I had my 4th round of Nivo today and am feeling good!

New/Breslow .43/Clark's Level III /Questions

I know y'all have answered these questions a million times and I'm so appreciative of any guidance you can give.

My husband had a suspicious mole removed from the dermatology PA last week and we got the call that it is melanoma and the PA has scheduled him for Wednesday for larger excision. The path report says, in part, Breslow .43, Clark III,peripheral margins uninvolved, distance of Melanoma In Situ from closest margin .1mm, pT1a.

WLE

Hi all,

I had my Melanoma stage 1A diagnosis on June 21 on my lower left calf. On Friday I had my WLE at Dana Farber/Brigham Women's. I am now waiting to hear back about the pathology. I am really hoping the margins are clear. 

C.t scan

Hi all,

I had a followup c.t scan which found a few things one things I can't understand it said was findings :Lower chest 3mm subpleural probable dependent change left lung base (4:20) can't talk with my doctor till the 17th wondering if anyone night know what this might be. Thank you

Please Help!

I was diagnosed with melanoma stage 2a in August of 2016. I have been folllowing up with Derm consistenly  since then and all has been well. This is where I need your advice/support. My husband is active duty military and there’s always the possibility that his next assignment could be overseas and that’s where my worry comes in. Should we simply request to stay in the states to play it safe due to how sneaky melanoma can be or should we take on overseas assignments?

Waiting on Biopsy - Concerned about nodular melanoma spread to brain

Had two suspect lesions sent for biopsy 9 days ago, still waiting on results. In past two days I have had a very low grade fever that comes and goes as well as some slight numbness on face and right arm. Also have some slight pain under right arm, but can’t feel any lymph nodes. Have not had any headaches to speak of any any weakness or other neuro symptoms. I’m very worried I have nodular melonoma that has metastasized to the brain. A few days before going to derm, I had some tightness under my arm that really hasn’t gone away. 

Perineural metastases

Has anyone here experienced perineural mets in the brain?

new lesion - any advice appreciated

I am a physician and woke up this morning with a new dark nevus on my face that was NOT THERE last night.  there is nothing else it could be besides melanoma. it is not large but it must be melanoma and the sudden appearance makes me concerned about rate of growth and invasiveness.  I am a bit distraught about the fact it is saturday and it will be at least until Tuesday before I can get this taken off, and that with pulling out my professional courtesy card.  I think I just need some reassurance that a few days won't make a difference, even with how suddenly this appeared.

MD Anderson

Hi Everyone:

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