MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Failed Braftovi/Mektovi

Hi Melanoma Fighters,

Update on Braftovi/Mektovi-had my 8 week scan after being on Braftovi/Mektovi and not the results I was hoping for.  My 2 liver mets increased slightly, 1 decreased slightly, I know have a new met in my upper arm and possible metastis in my L3 in my spine.  So, Dr is reviewing my case at a meeting tomorrow and I will have to make a decision to do Ippi/Nivo, TIL or clinical trial.  

I know I am in good hands but this was still a disappointment.


Just got diagnosed with Melanoma

Hello, hope for some insight for a superficial spreading melanoma.  Two weeks ago had this suspicious mole removed by plastic surgeon by excision.  Trying to gather as much info to ask my surgeon at follow up appointment.                                                                Lab results:                                                               Clark’s level III with Breslow thickness of 0.7mm.  Epidermal ulceration not identified.                           Mitotic rate 1/mm.