MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Difficulty Breathing after Keytruda

So, DH started Keytruda and is due for his next (third) infusion July 5. Since he started, a small cough turned into a respiratory infection, and then he started having difficulty breathing. Docs ordered a new CT scan 10 days ago and lungs showed more opacity and bigger lymph node involvement on the right side, plus precarinal area.  He has fluid on the outside of his right lung, also contributing to respiratory problems.(His previousCT was 11 weeks ago, two weeks before he started Keytruda.)  I did talk our local doc into increasing his lasix and lowering his BP meds

introduction and scared

I am new here.  I have had two melanomas.  One was on my calf when I was in my early 20s in 2000.  The staging was different then, I think.  I had a centinal lymph node biopsy and wide excision, and was fine.  I had another melanoma in situ in 2007 on my arm. Wide excision.  No problems.  I had my annual check in at MD Anderson over a week ago, and had a chest xray.  I just realized today that they have been calling me to come in.  I looked up my test results, and it says there is a "nodular opacity in the right mid lung.  non specific."  I am freaking out.  I am beyond terrified.

cerebral edema

Hello everyone- I am new here and my dad was reciently diagnosed with melanoma in his left leg. It had spread to the lymphnodes and through the blood vessels but the Oncologist still believed it was treatable however agressive. He was admitted to the VA Hospital about 6 weeks ago due to abnormal swelling and brusing to his RIGHT leg which only had a small spot of melanoma in it. (No melanoma detected in the brain or other major organs on PET scan) 

failure to diagnosis, mistreatment and now Stage 4, poor prognosis

My son noticed small sore on heel in April 2017 and went from one VAMC Dr to another, no diagnosis, just pain meds until August when sent to UPMC Wound Care in Altoona. No Dr saw him, a CRNP, began debriding and it wouldnt heal. Noticed lumps in left ground, still no biopsy, sent to VAMC Pittsburgh, Dr took one look and told him he had cancer. This was Sept 2017. Biopsy in October confirmed spindle cell melanoma, Stage 3. Finally in Dec began immunotherapy, unsuccessful, metastisized to lungs. Went for 2nd opinion at Hillman Cancer Center and told Stage 4, only option clinical trial.

Best sunscreen

I am just wondering what everyone has found to be the best sunscreen??? I have bought several different brands all claiming to be “the best” and I’m not thrilled with any of them. 

I need to find one that works the best in athletic situations for my son...he is a huge baseball player and he has been really good about applying and reapplying this season  but we always were so diligent even before he was diagnosed because he is a red head, blue eyes, etc...

Questions.....feeling lied to

Hello everyone, I had to stop ipi/nivo combo after 2 treatments because my oncologist said I was allergic to ipi. I believe that. I had a treatment of just nivo last Monday, the 25th. They wanted to check me, so I went back the 28th. In the meantime they had scheduled me for treatment for 2 weeks. Then called me and said it should have been 3 weeks and rescheduled me. I asked the NP on the 28th if that was correct and had they adjusted my dosage. First she said it should be every 2 weeks then she told me that the FDA had approved a 3 week dosage. I'm dosed at 1mg/kg.

Husband- recent melanoma diagnosis

Hi my name is Melissa. My husband Patrick who is 38 y/o just got diagnosed with melanoma. He had a mole on his chest turn dark and went to dermatologist who removed it. We received a call on Wednesday of dx and was made an appointment for today with a surgical oncologist. He was set up for a wide excision and lymph node dissection for 7/10. His path report showed Maligant melanoma w/superficial spreading, Clark level IV, Breslow 1.1 mm at least, growth phase vertical, epithelioid cells, mitosis 2/mm2, primary tumor classification pT2a.

2nd Scan Results

Hello all,