MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Feedback/Input sought for stage 4 treatment next steps

Hi All -- my 40 yr old husband was diagnosed with Stage 4 Melanoma shortly after undergoing emergency surgery to remove a large brain tumor last May. He does posess the Wild type, genetic mutation that allows for BRAF. Subsequent IPI/NIVO immunotherapy (now just NIVO), brain and spinal radiation, BRAF, and an intestinal surgery has helped to end tumor growth and eradicate many tumors.

can this wait until June?

My husband was diagnosed with mucosal (anal) melanoma 4 weeks ago after a colorectal surgeon took out what was supposed to be a polyp but turned out to be 3 melanoma tumors.

He finally had a PET scan on Friday, and we will finally learn his stage at his oncologist appointment this week (though we know it is at least the worst level of stage 2, since there were 3 tumors and the largest was ulcerated and 11 mm deep).

Arizona Melanoma Specialist

Hi, I'm recently diagnosed and am having trouble finding an actual melanoma specialist in Arizona. Does anyone else live in this state and know of a good specialist?

Phase 1: Back from Mayo

Happy Sunday, everyone!

Well, I just got back from prostate surgery @ Mayo Phoenix, late last night. Phew! & soooo glad to finally be home. This past week has been about as difficult as any I've experienced, since my original melanoma diagnosis & surgeries. I must be getting old, LOL!

Anyway, the surgery was successfull & pathology reports clear margins ... yay! As long as I don't have any complications, I should be slowly recovering, over the next 2 months. Just in time for my next scheduled  scans @ MDA, in June ;-)

How long for immunotherapy to work?

My boyfriend had his first round of the ipi/nivo combo 9 days ago. We had to go back to the ER on Friday (1 week after the infusion) due to increasing shortness of breath; the doctors there did a CT scan and found that the lung lesions have grown even more since his last scan from the previous week (yeah ... my boyfriend's had at least one CT scan a week for the last month for various reasons).

Query re new mole

Hi

i am 44 years old. I  very active mole checker and have been doing monthly checks for the last 2 years for my moles. I have dysplastic mole on my back which hasn't changed in the last 2 years but today I was going through my wedding photos and realised that the mole wasn't there in 2009 (age 35) at all. So I've developed this s mole between then and 2014 - it's on photos from then.

 

Query re new mole

Hi

i am 44 years old. I  very active mole checker and have been doing monthly checks for the last 2 years for my moles. I have dysplastic mole on my back which hasn't changed in the last 2 years but today I was going through my wedding photos and realised that the mole wasn't there in 2009 (age 35) at all. So I've developed this s mole between then and 2014 - it's on photos from then.

 

Electrotherapy for melanoma

Hi Folks,
Does anybody experienced electrotherapy before for melanoma? Do you have any information about this treatment?

Long-lasting/bumpy bruise? Something worse? ( pics )

Hi all. I’m back again...had a mole removed that came back as moderately atypical a few weeks ago. Been obsessively checking my skin ever since, convinced I’m going to end up with melanoma  

Nail hematoma or melanoma? (PICS)

Hello everyone

A few months ago I developed what I thought was a bruise (I hit hard objects with my feet all the time), under my right foot thumb nail. It has been about 2 to 3 months or maybe even a little more, and the supposed bruise doesn’t go away. Apart from this, a small mole also developed in the sole of that same foot.

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