MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Good News and Bad News

Hi,

I haven't been on here for about 6 months or so. However, I had melanoma on my left leg which spread to one lymph node, and terrible problems with seromas after surgery. On Dec 9th was my one year mark and the PET/ct scan came back clear. Yeah, now for follow ups.

Unfortunately, I have just been diagnosed with invasive breast cancer today and so will be dealing with that for some time. 

I haven't read recent posts but I wish everyone well. 

 

Father just diagnosed

My 85-year-old father was just diagnosed with melanoma after having a very large mass (6cm+) removed from left armpit 3 weeks ago.  We are unsure of the primary.  He also has a large mass in the lower lobe of his right lung which has not been biopsied but is suspected to be melanoma.  In March he had lymph nodes biopsied in the left armpit but they were erroneously diagnosed as squamous cell.  In 2016 he had squamous cell of the right salivary gland and the gland was removed.  He attempted chemo for the squamous cell but was unable to withstand more than the one infusion.  He is not attempt

Help. Not qualified for Ipi/Nivo trial

I was turned down for Ipi/Nivo trial here in Ontario because the margins from my head/neck WLE were positve. Onc wants me to start radiation and then Tafinlar/Mekinist.

I am looking for any advice and experience that anyone with head/neck has had with this combination.

My head has not even healed yet and all this is happening fast.

Thanks to anyone who may answer.  I am feeling a quite a loss not getting into trial.

 

Delay treatment?

My husband was dx in late August 2017 (craniotomy to remove largest of 13 brain mets - quite a surprise!) He has been on Taf/Mek since September, and has almost no side effects, and has been having mixed results - many tumors have decreased in size (lungs, liver, lymph nodes and some in brain), but others have stayed the same (brain & femur), and "some" new ones have popped up in his brain (small still).

Great News

Hi everyone,

I had my first PET scan and MRI since my surgery in late October of this year.  The scans got moved up a few weeks because of two suspicious lumps I found on the back of my head.  After scans and a ultrasound guided needle biopsy, the lumps are not melanoma.  They are reactive lymph nodes.  I have had those a few times over the years and each time they cause more anxiety than they should. 

2012 stage 1 what should I watch for?

I was dx with 1A on my left leg no follow up testing by recommendation of the oncologist due to its depth. Over the last year my dermatologist felt a lymph node in my groin area but as I’m a thin person she said sometimes you can feel them more on that body type. Also through the year I have a lipoma in my left upper arm, underneath, I have to raise my elbow to let them check it. I have been having migraines for years. That run in my family but they have been well controlled on an preventative medicine. I feel ok. My husband says I’m sweating profusely at night. He says it really gross.

2012 stage 1 what should I watch for?

I was dx with 1A on my left leg no follow up testing by recommendation of the oncologist due to its depth. Over the last year my dermatologist felt a lymph node in my groin area but as I’m a thin person she said sometimes you can feel them more on that body type. Also through the year I have a lipoma in my left upper arm, underneath, I have to raise my elbow to let them check it. I have been having migraines for years. That run in my family but they have been well controlled on an preventative medicine. I feel ok. My husband says I’m sweating profusely at night. He says it really gross.

Which treatment option do I choose ?

I was diagnosed with Melanoma Aug. 28, 2017.  I had four moles, 2 malignant melanoma, and 2 melanoma in situ.  The deepest lesion was on my chest, .80, and was removed with two lymph nodes.  All margins were clean and the lymph nodes were negative.  I have had three additional surgeries for two basil cells with atyp cell activity and one squamas carcenoma for a total of 7 surgeries.

Oncologist A sugested a round of Opdivo, one treatment every two weeks for one year.

Suspected Melanoma

Hello there

I hope someone can help

about a year ago i had what looked like a fungal nail infection, so i used curanail for a few months, the nail was yellow and fell off.

it grew back and looks very like it has a brown patch under it with a black line in.

I got very upset a week ago and called NHS 111 who said make an appointment wiht my GP.

I went to the GP and she googled it and said it does not look like it but give us a nail clipping and we will test for fugal infection.

It’s been a year or so since my last post... update and question (brain surgical procedure)

Last year, I went to the ER on Thanksgiving with double vision and found there were three tumors in my head.

we did targeted radiation on them within 2 weeks, then 10 whole brain radiation sessions  (isolating my hippocampus for a clinical trial).  I ended up having multiple other lesions around my body (adrenal gland, spine, lungs and ovary).  We tried getting me off my steroids and I ended up in the hospital for two months because I had issues during that.  I started Taf/Mek and have been taking that at lower dosages all year.

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