MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Castle Report

Received my Castle Decision-Dx report.  I was diagnosed with superficial spreading melanoma, stage 1B, no sentinel lymph node biopsy done, depth of .93, Clark level IV.  Glad to see that the Castle report shows a sub-class of 1A, which is a low risk of reoccurrence within 5 years.   Although I know the report is fairly new, it helps to relieve some anxiety and I know that I must keep doing skin checks every three months.  Anyone else receive a Castle report?  

My diagnosis/pathology for my new friends to evaluate

Just got this Tuesday of this week. Will have wide excision within 30 days of biopsy as I saw a bit of data that odds go down 5% after 30 days, and my consult with my surgeon is this coming Monday. How am I looking experts in the group?  I think my only concern is that while I will be hyper prudent, (and vigilant going forward)  I'm not overly concerned. Also curious if anyone thinks I should have the Sentinel Lymph Node Biopsy. Thanks everyone, I am grateful to find this lace, even if we'd all rather not be here!

Hard lump

Hi. Summer 2017 I was diagnosed with a Satage 1A Melanoma. It was pretty random. A tiny scab that wouldn't heal on my right calf. Very small but it came back Melanoma and a month ago another mole came back atypical. Now I have developed a hard immobile pea sized lump under my left ear up by the jawline. Do you tell your melanoma doctor about this or do you call your normal physician. And what are the chances it is even related? Kinda is ruining my day fussing about it. I don't like the "unknown" part of all of this.

Hard lump

Hi. Summer 2017 I was diagnosed with a Satage 1A Melanoma. It was pretty random. A tiny scab that wouldn't heal on my right calf. Very small but it came back Melanoma and a month ago another mole came back atypical. Now I have developed a hard immobile pea sized lump under my left ear up by the jawline. Do you tell your melanoma doctor about this or do you call your normal physician. And what are the chances it is even related? Kinda is ruining my day fussing about it. I don't like the "unknown" part of all of this.

New trial??

Beginning new trial of Cobimetinib and Atezolizumab.   Anyone have any experience with this or know anything about it? 

BRAF

Ok call me Dumb but this BRAF thing is getting me.  

Which pathology report should tell me what is the makeup of my Melanoma ?   Who do I ask?
I have 3 reports from the following should it be listed on any report?
1. Dermatologist from the initial mole that sent it  to be biopsied?
2. Surgeon Oncologist who did initial surgery that removed tumor and two lymph nodes. Sent to be biopsy?
3. Surgeon Oncologist who did the second surgery to remove the rest of my lymph nodes Sent to be biopsy?
4. Oncologist who has started me on Opdivo?

Largest Melanoma Patient/Caregiver Event Ever! April 22

Meet stage IV survivor and baseball hall of fame star Mike Schmidt. Meet others, find support and have fun.

www.safefromthesun.org

 

Subungual? Possible since I have unknown primary

Friends;

I have discovered a weird thing with my left pinky fingernail. Since I have an unknown primary...wondering if it could be subungual. I have a picture, but don't know how to post them, does anyone know how to post a picture? It probably isn't as it seems it would be unlikely for me to have subungual. It has no "black streak" but it is a streak that affects the whole nail, just doesn't have any color to it.

Thanks,

Ted

Thoughts about whether my story could be a Nodular melanoma

During Christmas of 2016 (15 months ago) I was 28 weeks pregnant with twins. I got a pimple that wouldn’t heel and bleed a lot. It would develop a scab then I would knock it and it would start bleeding again etc.

Nivo once a month

Greetings everyone;

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