How long did it take for Ipilimumab/Yervoy to start working for you? What side effects?

Posted By
Anonymous
6/29/2014 5:39pm
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Replies: 5

I've been on an Ipi 3mg/kg trial for three weeks now (for stage III, post-surgery adjuvant), but so far I've not felt any different. How long did it take for you? What side effects did you get?

I heard getting white hairs is a good sign so I'm hoping to see those... especially since I've no measurable tumors so there's no other way to know if it's working.

Hi Friend,

Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

Blessings,

Julie 

Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

Stage 4  (TXN2cM1b)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, (intransits) 2013 IPI, (intransits) 2014 PEMBRO, (intransits and lung met) 2016 VATs

Hi Friend,

Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

Blessings,

Julie 

Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

Stage 4  (TXN2cM1b)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, (intransits) 2013 IPI, (intransits) 2014 PEMBRO, (intransits and lung met) 2016 VATs

Wow ok, congrats! 

I'm doing my second treatment Thursday and was curiouse also..So far no side effects for me either..Good luck ..Let's hope this kicks melanoma butt!!

I just started on IPI this past Thursday so only 6 days out and already have had reactions to it. I am stage 4 with lung mets. I started with itching while getting IPI then the next day the joint pain, nausea, vomiting and headaches started. I have trouble walking now.  I have also had 5 high doses of radiation to the recurrence on my arm just prior so apparently my immune system is in high gear. Everyone is different I just get to be the lucky one and get it all at once​.  

Good​ luck with your treatments. I am hoping that in three months with all these fun side effects my cancer will be gone. 

 

Adriana