I'm new here in terms of posting but have checked the site off and on since I was first diagnosed in 2000. I won't go into all the details because I have fairly specific issue that I would like help with. My MM was in my left leg and when another showed up not so far away from the primary, I got to be part of an isolated limb perfusion clinical trial at MD Anderson. That went well and I was NED for three more years with a couple of sub-q's and some sarcoid tissue over the next few years---but no organ involvement until recently. The doctors did an endoscopy because of some gastric problems. The visual showed masses of anomolous tissue while the biopsy confirmed melanoma. I had a PET last week. The PET radiologist says that the scan shows involvement of the duodenum. My surgical oncologist's interpretation is that there is a 6x7-cm mass between my duodenum and liver with infiltration into both. Because of the nerves and blood vessels in the area, he has declared it inoperable until it can be reduced with radiation.
I met with two radiologists today. One said that he wouldn't risk doing radiation because of the likelihood of damaging the liver. The other wants to start radiation and chemo next Tuesday. So some doctors say surgery is inoperable and others say radiation is too dangerous.
My interest is in getting additional opinions about these and other options--especially any experiences with surgeons who may not be so quick to declare a tumor inoperable.