As luck would have it, I had full head to toe PET/CT scans in 9/10 to get into a trial but I did not have a 1cm tumor. I had 2 tumors 6mm & 4mm on thigh
Now, I have another recurrence on my thigh that is growing very fast.
I really do not want to have scans again until I am ready to qualify for a trial and the scans are part of the trial requirement.
Question: Has anyone had their tumors measured by other macines besides CT like ultrasound or anything else that can measure the size of the tumor? Are these machine reliable/definitive??
If I can just determine when my tumor is 1 CM then I can contact trials I might qualify for!! I do not want to sign up for a trial assuming that my tumors are 1cm then go through the scans & not qualify because the scans come back with less than 1 CM tumors.
Thanks for taking the time to repsond to my post. Wishing everyone a NED status.