Posted By
8/8/2017 4:29pm
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Replies: 7

In June I was told I was in remission after 14 months of nivo/ipi combo and ipi alone. I had another scan last friday and now being told NED!!!!!!!!!!! Don't know if there is much difference between remission and NED but it just sounds better. I still get ipi every other week and dealing with multiple side effects but small price to pay for no melanoma. Vitiligo is still spreading, started on hands and arms but has moved to ankles and knees, love it as it is a positive sign.

sister of patient - (8/8/2017 - 4:39pm)

Great news - so pleased for you!!! Congrats and enjoy your new status!!! Best wishes always!!  :)


jennunicorn - (8/8/2017 - 5:20pm)

AWESOME!! Best 3 letter acronym ever! Hope NED is your title for good!

Jenn - stage IV NED - Completed Ipi/Nivo (Yervoy/Opdivo) + surgery

Ridingaroundwith27Jennifers - (8/8/2017 - 6:52pm)

Congratulations!  Wonderful news!!

Casitas1 - (8/8/2017 - 11:45pm)

Well done!

Nick C - (8/9/2017 - 9:26pm)

Way to go!!!



Bubbles - (8/10/2017 - 11:20am)

Congrats!!  Enjoy!!  Just wondering....are you still getting ipi infusions q other week...or nivo???  Here's to a walk on the white side!!!  If you and others are's a bunch of links re: vitiligo -

Best wishes.  Celeste

Hukill - (8/11/2017 - 11:44am)

I'm sorry, I meant nivo every other week. The plan right now is continue untill the end of december and then stop if my scans are still clean.