One step closer to TIL trial

Posted By
1/10/2018 9:43am
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Replies: 6

(Sorry for the duplicate post. I accidentally posted this anonymously and didn't notice it until it was up.)

I went to NIH yesterday for the TIL trial screening. Before I started the process two nurses outlined how things were going to go during the day. They told me that after the tests and an exam by my clinical fellow I would meet again with her and with Dr. Sherry, the attending physician. "We won't be able to give you a definite answer today, but you'll have a good idea about whether or not you'll get it."

Dr. Sherry called me an "excellent candidate." But he had two concerns. First, I have a separate thyroid issue, and one lobe of my thyroid has pushed my trachea slightly to one side. He was concerned about whether they could easily insert a breathing tube for surgery. Second, I take methimazole for hyperthyroidism. He told me he needed to consult with their endocrine team to see what they thought. He was particularly interested in whether methimazole has any effect on lymphocytes.

So if my thyroid isn't seen as a problem, it sounds like I'll get in. They said they would let me know by early next week.


Bubbles - (1/10/2018 - 10:22am)

Step by step!!!  Hang in there!  celeste

Mark_DC - (1/10/2018 - 11:16pm)

Thanks for updating us Bill and good luck, very much hope you will join the trial!

Bill hoping and praying you get in!  We spent a lot of time with Dr. Sherry while William was there for TIL and really liked him!  He was one of our favorites!  Glad they are being so thorough!  - Stacy

mrsaxde - (1/11/2018 - 5:18pm)

Thanks Stacy! I liked Dr. Sherry too, and my clinical fellow, Dr. Shindorf. But I'm having a little trouble adjusting to the idea that Dr. Shindorf is 3 years younger than my daughter! LOL

Has your husband started in the LAG-3 trial yet?

LOL - but look at young as energetic and eager!   Yes, William started - he is actually receiving treatment #2 today in the LAG-3 trial.

mrsaxde - (1/12/2018 - 1:35pm)

Oh wow. I wish I had known you guys were going to be at JH today. I was there this morning for blood work and my follow up appointment. Just got home.