I just had my MRI brain scan & PET/CT scans. I consider the results to be very good. No organ involvement, no brain mets.....Just still have 2 node: .4mm &.6mm in my left thigh.
My primary was in my foot 2005, 1st intransit in thigh removed 9/2009, 2nd intransit in thigh removed 5/2010.
I am considering Rouche BRAF. I am Not happy about Braf because the response might not be long term & might have to continue to take the pill ongoing with no end point. Also, considering IPI. IPI scares me because of the potential severe long term effect, but at least there is an end point to the treatment.
Last but not least, I can watch & wait, but that will not cure my cancer, Stage 3c
My preferance would be to do IPI but reading all the post regarding the side effects for IPI scare me. I am very active person & I am afraid my tumors might spread or grow before IPI kicks in (I onlyhave a .4 &.6mm in left thigh, afraid IPI will spread tumors to organs) or that I might get one of severe side effects.
Has anyone done IPI with minimum side effects?????Need some words of encouragement. Anyone having long term response with Braf??
I need to decide to do "systemic treatment or "wait & watch". I would sincerely appreciate any opinions or feedback, recommendations.
Thank you for taking the time to read my post and replying.