Still having a tremendous response to BRAF, now in my second week (after completing ipi on 7/29). My neck node, which was looking like an egg stuck to my neck, is now almost gone!
I have a rash, which looks & feels like goose bumps, on my chest/arms/legs. Not itchy.
Has anyone else who's done ipi had the "ipi itch" present this way? Or anyone who's done BRAF?
It is not at all bothersome, and I will happily live with bumpy arms and legs and be able to function again, over the weeks leading up to starting BRAF! (5 lung drains, 2 ER runs, admitted for 2 days, sent home with oxygen ...)
I just want to encourage anyone, who is on ipi, or BRAF. There are many folks who are in such tragic situations here, and I pray for everyone who posts daily. There CAN be a good response (even if delayed).
Praying that everyone has a good day, and for those having a bad day (and we ALL have those), I pray you can find some comfort and coping.
Stage IV May 2011