Stage IV - DX in 2005, NED since 2009

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2/8/2019 3:38pm
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Replies: 8

Annual scans in January showed that I'm still NED after 10 years.  Diagnosed at Stage IV in Aug 2005, surgeries, radiation, IL-2, and two trials - the last being IPI 10mg/kg compassionate use trial - led me to NED in Jan 2009.  2 addt'l years of treating side effects - heavy steriods for 18 mos plus other stuff during a time when my husband was also diagnosed with cancer (2010 - Kidney - he's NED too). 

Still here, working full time, praying and trying to not take precious life for granted.

Stay strong - all of you in the fight and/or the caregivers out there! 

Hang in there!



Luke 1:37

Inspiring news for us all

Tony -  IV - Ipi/Nivo (Yervoy/Opdivo); now on Nivo maintenance

Hooray, Rocco!  Thanks for the boost.

October 2017 primary scalp WLE; SLNB; partial neck dissection (PND). July 2018 recurrence in neck. August 2018 second PND. September 2018 started Nivo. December 2018 SRS for brain met.



You are truly an inspiration. Thank you for posting this.

Great to know!! Thank you for posting your news and congratulations and best wishes to both of you!! :)


Congrats & so happy for both you and your husband! I am especially interested in your success as I am also an ipi 10 mg responder - NED since Nov 2012. 

Everyday is indeed a blessing!!


Nice to meet you, Tom. I'm so glad to hear that it worked for you as well! Stay well!

Luke 1:37

Rock on Rocco!  I'm so glad you came through the treatments and are here living life to the fullest!

Jackie <3

Congrats!  May all side effects and cancers stay gone!!!!  Thanks for sharing! Celeste