Stage IV - what's next

Posted By
Amanda's Mom
12/6/2018 3:04pm
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Replies: 2

Amanda has been on all of the "protocol" treatments.  She has done really well on the Cotellic and Zelboraf combo, until now.  Multiple tumors in the lungs and almost double in size since September.  We see the Dr Monday for the "plan".  Possible trial..    I am trying to stay positive, while my daughter feels that she is starting these next months as the end.  She also has a new pleural thickening. I can't make sense of that.

Thank you

sing123 - (12/6/2018 - 9:09pm)

I am so sorry. Will keep you both in my thoughts. 


Diagnosed April 2018; Stage IIIb; 1 excision on head, started immuno (Opdivo) May 2018; new spots Oct. 2018; second surgery; about to start radiation 

WithinMySkin - (12/6/2018 - 10:48pm)

I saw that Amanda has been on Keytruda on another post as well as a few other treatments, but I didn't see that she's been on Ipi/Nivo. Definately worth looking into if she hasn't tried it. Also, speaking as a 34 year old who was diagnosed at 31, it's hard to find others in this age group who can relate. If she wants to reach out and chat with a fellow melanoma gal, she can always reach me through my blog

Thoughts and prayers to you and Amanda,