Subungual Melanoma

Posted By
mike potthoff
8/14/2014 10:11pm
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Replies: 10

I was diagnosed today with subungual melanoma.  Started in my finger nail and now recommending that they remove 1/4  of my thumb.  Does anyone know of a cancer center in the US that specializes in this type of melanoma?  Scary for me...four young sons and have always been healthy

Marianne quinn - (8/15/2014 - 12:04am)

My husband had a partial amputation . Subungal melanoma is rare and really hard to get info on. Read my posts for the whole story. Almost a year since diagnosis now.?he is able to golf, ski, do woodworking . He had 1/2 his thumb removed and really has adapted well. He can tie his shoes. Safety pins are a problem. Keep in touch especially if you find a specialist. I do not know of any. Good luck

mike potthoff - (8/16/2014 - 8:18am)

Thank you much.  Will let you know if I find a specialist.

Marianne quinn - (8/16/2014 - 10:42pm)

My husband said to make sure you massage and use lotion on the amputated area, please keep me posted  regarding your treatment . The only definitive study about subungal melanoma was done in Australia  in 1991. Less than 1 percent of melanoma patients have subungul  melanoma. Some think subungal melanoma is a different disease than most melanoma.!my husband wanted to know if you have had trauma  on your thumb. Some docs think there is no relation, but the Australian study found an association. 

I feel for you and your family.. My husband has his next scan on September 5. He feels great and we are going backpacking next week up to 12000 feet.. 

You will get through this. Marianne 

mike potthoff - (8/18/2014 - 8:17am)

Yes there was initial trauma to the thumb.  I jammed the thumb on the side of the pool while swimming and buckled the nail so part of the nail seperated from the nailbed.  Thank you for the response.  Getting amputated next week.

Marianne quinn - (8/19/2014 - 12:14am)

Are they doing a sentinel node biopsy too?

mike potthoff - (8/25/2014 - 8:16am)


mike potthoff - (8/26/2014 - 7:57am)

Thank you for responses. Encouraging to hear.  Surgery on for me on thursday...thumb removal and biopsy.  Initial PET scan did not show any spread.  However, still removing and biopsying lymphnodes.

mike potthoff - (11/19/2014 - 7:33am)

Melanoma moved to the bone and now have spot where spleen and rib located along with lung.  If anyone has any experience with this would appreciate any insight on treatment, medications, medical institutions.

thank you,

Mike p

casagrayson - (11/19/2014 - 5:00pm)

I'm so sorry you received this news, Mike.  I have no experiences or advice to share -- just wanted to give you a virtual hug.

Strength and Courage,


mike potthoff - (11/19/2014 - 6:21pm)

thank you much