Posted By
4/28/2014 7:25am
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Replies: 9

OK...with summer nearing, I hope, it's time to get some sunscreen. I probably like many of you, try to avoid the sun as much as possible. I want to enjoy my life and hate living in fear all the time. Not sure that will ever change but I'm trying. That being said I have been researching sunscreenslike crazy ad it has me more confused with chemicals to avoid, what best protects your skin etc... My derm said I shouldn't be concerned with sunscreen before 10am and after 4:30ish as UV rays are weakest and I can still get some natural Vitamin D. The other suggestion was zinc and titanium as best UV ray blockers but saomething is better than does anyone have any suggestions?????

Linny - (4/28/2014 - 9:18am)

You can also buy UPF clothing and bathing suits. Check out Coolibar and Lands End.

For example, you can wear a UPF t-shirt to the beach along with some UPF swim trunks. Then all you need to do is apply sunscreen to the remaining exposed parts. So, in essence, you're applying sunscreen to a much smaller surface area of your body.

Coolibar has a decent selection of hats. Not sure what Lands End has.

Aveeno makes a sunscreen with zinc oxide and titanium. It works fine, but it does make your skin white when you apply it.  I got mine at Rite Aid.


Stage III, Unknown Primary; 1 positive node in left axilla

Webbie73 - (4/28/2014 - 10:04am)

It is my understanding that sunscreen is not just for summer use. During the winter months our faces and hands are still exposed to the sun and should be protected. 

JoshF - (4/28/2014 - 11:26am)

Good point....I don;t see much of sun in least this winter in Chicago.

Let's work for better treatments....for a cure!!!!

Gene_S - (4/29/2014 - 7:05pm)

And I have some ocean front property for you here in Ohio

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

cpeters2498 - (4/28/2014 - 4:59pm)

Regarding Sunscreen I am Stage IV and doing IPI and Dabrafenib.   They told me the Dabrafenib would make my hypersensetive to the sun and I am an outdoors person.

From my research I felt that the brand BLUE LIZZARD was the way to go.

So I bought a gallon of Blue Lizzard Sensative.  I had a week long convention in Las Vegas a few weeks ago and I cam back home untanned at all.   It is a little like trying to rub in Crisco shortening though.




kylez - (4/29/2014 - 1:51pm)

Hi Josh,

I've settled on Anthelios 40 sunscreen cream. It seems expensive (1.7 oz tubes) but due to the texture, one of those tubes goes quite a long way. One of its ingredients is Mexoryl XL (ceamsule) which they combine with the more typical avobenzone, cutting a bigger part of the UVA spectrum than avobenzone alone.

I have a few UPF-rated shirts and one UPF-rated pair of pants. If I'm going to spend a particularly large amount of time in the sun I will make sure I wear one of the shirts. If I'm goint to be out all day (like at an outdoor sporting event) I'll add in the UPF-rated pants too. Doing this, as a fringe benefit I come back feeling a lot less "fried" which I attribue to getting very little sun/UV exposure from the clothes + sunscreen.

- Kyle

2 primaries; lung/brain mets in past; paratracheal lymph node currently; participating in  Opdivo/Lirilumab trial

kylez - (4/29/2014 - 1:52pm)

(ecamsule, not ceamsule.)

2 primaries; lung/brain mets in past; paratracheal lymph node currently; participating in  Opdivo/Lirilumab trial

sweetaugust - (4/29/2014 - 4:10pm)

Hi Josh,

Knowing that our skin is our largest organ, I try to limit the amount of chemicals I put on it.  My gut feeling is that a lot of these SPF's out there may block some of the bad rays, but they are probably not good for our body in large quantities.  You may be familiar with the saying "everything in moderation."  So I, like some of the others here, use the sun clothes from; when I am going to be in the sun in the middle of the day.   I wear the long sleeve shirts and the pants....that way I only have to apply SPF to my face, ears, neck, hands and feet.  And I often wear a hat...and put my chair in the shade.

If I am to use SPF, I choose to either buy a more natural brand at Whole Foods, or my friend just forwarded me the following recipe the other day, so I could make my own.

Just cut and paste the above link into your browser and it gives the directions on how to make it.

These are just my suggestions.  Good luck with everything,


Gene_S - (4/29/2014 - 6:59pm)

My motto is "If I wouldn't eat it, I would never put it on my skin."

I been searching for proof that the sun causes melanoma for years now and I have yet to find any concrete evidence. The sun causes skin cancer but not melanoma. It's time for the truth.

I my personal case, I firmly believe that the lack of sun was the cause of my melanoma.


Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.