Update on Radiation

Posted By
Anonymous
12/6/2018 9:35pm
Activity
Replies: 2

Thank you all so much for your responses to my query on radiation for head and neck. My local radiation guy wanted to do both, but when I went to Mayo in Jax, Dr. Richard Joseph (who sits on the national board and participates in establishing protocol for melanoma treatment) advised against radiation to the neck, saying that it would be too aggressive at this time, especially as my last PET scan did not show cancer. So, I am going forward with the radiation to my head. The tech described it to me as the electron type, which is neither photon nor proton. 

I am reasonably literate, but there is so much to learn and research in navigating one’s care as a patient! 

I really appreciate the feedback from you all. And am very happy that I got a second opinion. Now I feel like I can embrace the treatment. 

 

sing123 - (12/6/2018 - 9:37pm)

Sorry this is from Cindy! 

Cindy

Diagnosed April 2018; Stage IIIb; 1 excision on head, started immuno (Opdivo) May 2018; new spots Oct. 2018; second surgery; about to start radiation 

lkb - (12/6/2018 - 9:42pm)

Hooray, Cindy. Glad to hear the second opinion was helpful.

October 2017 primary scalp WLE; SLNB; partial neck dissection. July 2018 recurrence in neck. August 2018 second partial neck dissection. September 2018 started Nivo. December 2018 brain met + recurrence in neck.