Urgent Need - Any Insight & Ideas

Posted By
Napa K
10/22/2010 12:29am
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Replies: 2

Hoping for and welcoming any input on any other potential protocol options for a fellow patient located in Central California.


*Stage IV, mom of two young children, diagnosed Fall '09.

*Has had surgery (spleen removed) failed PLX4032, high dose IL2 & Ipi ; has had WBR

*Has advancing brain mets (12 +) growing rapidly and rapid growing sub cue nodules

*As of yesterday she was given the last option of oral themolizide by her oncologist.


If you have any info to share, please let us know. And please include lovely Reese and her family in your prayers.


Be well-


Hope is the most powerful drug


My husband stage IV innumerable liver,lung mets is kind of in the same boat with you.  Failed IL-2 and Ipi.  Our oncologist is not giving us alot of options.  He offered DTIC, Taxol/ Carboplatin, a trial he is doing with Nexavar/ARQ 197 (I know nothing about).  He is getting a genetic profiling done right now and praying he may have the Kit gene??? 

Anyway good luck finding something for you to try.  It is so very frustrating knowing which bridge to cross.  I am trusting in prayers to lead us. 



I can do ALL things through Christ who strengthens me! Phillipians 4:13

Kari, I have no ideas for your friend, but I can keep Reese and her family in my prayers.  I hope they can find a treatment for her.

Take Care,

Sherron, wife to Jim