MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Anonymous's picture
Anonymous
Replies 11
Last reply 10/3/2017 - 5:24am

  If one had to choose one over the other--which would it be?  Does one have fewer side effects?  I realize everyone will resond to the treatment differently.  I just would like some input on why one is "better" than the other.  

Thank you

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Anonymous's picture
Anonymous
Replies 5
Last reply 10/2/2017 - 10:44pm
Replies by: Anonymous, stanjuza

So it appears that change seems to be the biggest factor when it comes to detecting melanoma. My question... is there a point at which melanoma STOPS changing? For example let's say you aquired a new mole 5-10 years ago and it has never changed. It popped up one day and stayed the same. Could that be melanoma? Or would it just continuously keep changing??

thanks! 

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Anonymous's picture
Anonymous
Replies 3
Last reply 10/2/2017 - 6:55pm
Replies by: Anonymous, cpauli

Has anyone heard of a pin head size melanoma? I have a jet black mole which can't be bigger than a pen mark.. it is dark blue black and has been there a good 4 years, hasn't grown in size. I have had a few  one precancerous and a few atypical moles removed in the past, but they have been big brown ugly moles or weird. This one seems ok, just real dark and not totally flush. 

I read a few articles that say melanoma can be found in very small diameter moles, but are always early stage.. 

 

 

 

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Scooby123's picture
Replies 6
Last reply 10/2/2017 - 4:38pm

Hi all hope you all well has can be. Some think been on my mind and you guys might be able to solve it.

 

when I had my pet scan end of June my 3 month bloods was due at my GP at the end of July. On that test my thyroid was lower which my GP said we will keep watching it in 3 months time on next bloods. Unfortunately I had 2 nodes in chest positive so started keydruda. On bloods test my thyroid had reduce to 0.4 which was discussed in clinic on visit. They asked me how I was feeling as this was low and would start treatment if had symtoms. 

I replied this is what I am dealing with at present. The Mel, going through menapause, sinus issues and now low thyroid. I suppose lots of side effects I am feeling could relate to most of my issues. They have decided to wait 3 weeks for next bloods. 

 

What point if you had a thyroid issue went on treatment and can pets an interfere with thyroid results.

 

Scooby❤️

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CHD's picture
Replies 15
Last reply 10/2/2017 - 1:33pm

Haven't seen her here for awhile.   Enjoy her posts!  Has anyone heard from her?  Is she doing ok?

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Anonymous's picture
Anonymous
Replies 2
Last reply 10/1/2017 - 7:42pm
Replies by: HEGCWM, Anonymous

Hi, everyone. It has been 11 years since my stage 1 diagnosis. I still check the board occasionally, though, and pray for you. . I found out on August 16th that a biopsy of the conjunctival area of my eye came back as B cell Non Hodgkin's lymphoma. On August 31, I found out that a PET scan done the previous week showed that the lymphoma was disseminated in lymph nodes throughout my body. There were also metastases located in a pelvic bone. This puts me at stage IV, although I understand that this type of lymphoma is not as serious as other stage IV cancers. We meet with our oncologist next week to discuss a treatment plan that will involve at least two different types of chemotherapy. I am just curious to see if any of you have had melanoma, and then lymphoma, or if there is even a connection. I'd love to hear your thoughts/experiences. Thanks. 

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mom3girlsFL's picture
Replies 1
Last reply 10/1/2017 - 5:13pm
Replies by: ilikepralinen

Anyone have issues with elevated creatine kinase, total, serum levels while on taf/mek combo?

Thanks,

Laurie

Do not fear tomorrow, God is already there.

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Anonymous's picture
Anonymous
Replies 21
Last reply 9/30/2017 - 6:25pm

i am just curious - i know may is melanoma awareness month and in speaking about this topic with friends i realize so many are so clueless about melanoma. they think it must be some ugly looking, huge, black mole. in reality, i know a few people that have pretty small melanomas that werent dark at all and looked like a little freckle.

so did your melanoma fit the description that most people assume - or did it look pretty harmless and your dr was even surprised by the diagnosis.

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Munchsolis's picture
Replies 8
Last reply 9/30/2017 - 4:18pm
Replies by: Anonymous, kimmyl, EJ, raun cesar, Munchsolis, Kim K, jennunicorn

Hello there. I have been newly diagnosed with melanoma. The mole was removed a week ago, they said it was 1.2mm. I am being referred to the oncologist next week and general surgeon this week. I am also 3 months pregnant. I received a copy of the path report today. States "at least stage 4" which I am assuming refers to clarks as they can't stage it until more testing is done?

i spoke with my general dr (the derm is the one who diagnosed and referred me). She said since the area was so small it is really nothing to worry about.. but from what I am reading that is not necessarily true?

im wondering what to expect for the larger excision by general surgeon and how they find out if it has spread and to lymph nodes which they mentioned? Sorry so long! 

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Anonymous's picture
Anonymous
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Anonymous's picture
Anonymous
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Anonymous's picture
Anonymous
Replies 1
Last reply 9/30/2017 - 7:37am
Replies by: Jamie1960

I am a 60 yr old M. For the past yr I have developed a number of new moles, ranging in size, color, height above skin, and two in particular get itchy.
Should I be concerned

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stevenallenschwartz's picture
Replies 7
Last reply 9/29/2017 - 11:50pm

I just received my results from my Petscan. No cancer as of today. This has been a long journey with heartbreaks and anxiety. This forum has been so good to me during my moments of doubt! I want to share my gratitude to all and my thanks to Keytruda for getting me clean. 

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