MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Anonymous's picture
Anonymous
Replies 1
Last reply 6/2/2013 - 12:03pm
Replies by: ecc26

I had a couple moles removed and told I was lucky that it was pre melanoma but the doctor didn't really explain my path report the first time and I had to have them go in deeper until the margins were clear. I was told that I would have to be vigilant and watched closely could anyone explain to me the path reports?

A. Microscopic examination of the slides show an atypical melanocytic lesion with melanocytes in the epidermis and dermis consistent with a dysplastic junctional nevus. The margins of excision cannot be accessed with certainty.

B. Microscopic examination of the slides show a limited specimen showing atypical proliferation of melanocytes in the dermis with junctional component highly consistent with a junctional dysplastic nevus. Recommended reexcision with negative margins

Final Diagnosis
A. Consistent with a dysplastic junctional nevus The margins cannot be accessed with certainty. Therefore, I recommend re excision with negative margins.

B. dysplastic junctional nevus with positive margins Recommend re excision with negative margins

Here is the path report from re excisions

Sections consist of skin erosion, squamous hyperplasia, edema and mild chronic inflammation. Residual carcinoma or dysplasia is not identified in these sections. The margins are free of dysplasia/carcinoma.

Final Diagnosis
Residual dysplasia is not identified. Erosion, squamous hyperplasia, and mild chronic inflammation.

Can anyone kind of explain to me what all this means in a more understanding way? I am having to see a dermatologist about more suspicious moles that are changing and suspicious on other parts of the body. The two biopsies before from the same leg.

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I had a couple moles removed and told I was lucky that it was pre melanoma but the doctor didn't really explain my path report the first time and I had to have them go in deeper until the margins were clear. I was told that I would have to be vigilant and watched closely could anyone explain to me the path reports?

A. Microscopic examination of the slides show an atypical melanocytic lesion with melanocytes in the epidermis and dermis consistent with a dysplastic junctional nevus. The margins of excision cannot be accessed with certainty.

B. Microscopic examination of the slides show a limited specimen showing atypical proliferation of melanocytes in the dermis with junctional component highly consistent with a junctional dysplastic nevus. Recommended reexcision with negative margins

Final Diagnosis
A. Consistent with a dysplastic junctional nevus The margins cannot be accessed with certainty. Therefore, I recommend re excision with negative margins.

B. dysplastic junctional nevus with positive margins Recommend re excision with negative margins

Here is the path report from re excisions

Sections consist of skin erosion, squamous hyperplasia, edema and mild chronic inflammation. Residual carcinoma or dysplasia is not identified in these sections. The margins are free of dysplasia/carcinoma.

Final Diagnosis
Residual dysplasia is not identified. Erosion, squamous hyperplasia, and mild chronic inflammation.

Can anyone kind of explain to me what all this means in a more understanding way? I am having to see a dermatologist about more suspicious moles that are changing and suspicious on other parts of the body. The two biopsies before from the same leg.

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I had a couple moles removed and told I was lucky that it was pre melanoma but the doctor didn't really explain my path report the first time and I had to have them go in deeper until the margins were clear. I was told that I would have to be vigilant and watched closely could anyone explain to me the path reports?

A. Microscopic examination of the slides show an atypical melanocytic lesion with melanocytes in the epidermis and dermis consistent with a dysplastic junctional nevus. The margins of excision cannot be accessed with certainty.

B. Microscopic examination of the slides show a limited specimen showing atypical proliferation of melanocytes in the dermis with junctional component highly consistent with a junctional dysplastic nevus. Recommended reexcision with negative margins

Final Diagnosis
A. Consistent with a dysplastic junctional nevus The margins cannot be accessed with certainty. Therefore, I recommend re excision with negative margins.

B. dysplastic junctional nevus with positive margins Recommend re excision with negative margins

Here is the path report from re excisions

Sections consist of skin erosion, squamous hyperplasia, edema and mild chronic inflammation. Residual carcinoma or dysplasia is not identified in these sections. The margins are free of dysplasia/carcinoma.

Final Diagnosis
Residual dysplasia is not identified. Erosion, squamous hyperplasia, and mild chronic inflammation.

Can anyone kind of explain to me what all this means in a more understanding way? I am having to see a dermatologist about more suspicious moles that are changing and suspicious on other parts of the body. The two biopsies before from the same leg.

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bikerwifee's picture
Replies 8
Last reply 5/25/2013 - 6:29pm

I dont know how but Lynn ldh went down to 900 was 1300. The dr will not be doing the sixth gamma knife. Lynn is to weak. He starts Temador tomo but they gave us only a 15 to 20 percent chance in it working. Theres just nothing else for us to try. Lynn is a fighter and was willing to try this.

Lynn got saved a long time ago and hes says he knows hes going to heaven. I think hes ready but not ready he prayed today and asked God to heal him hes asked God to please take him home if he wasnt going to heal him. Ive never seen one man have so many people pulling for him. They recently had a bike run for him over 100 motorcycles and riders showed up. Ive seen people pray that I would have never thought could pray.

Thank all of you for responding when i just needed comforting words. I pray God continues to comfort snd heal each of you and I pray all these new drugs make it in time to save you all.

Lynn survived 5 gamma knife surgeries for 32 brain mets, ipi was a breeze no problems, zelobraf for 8 month and abaraxene and know on to temador. DONT EVER GIVE UP OR GIVE IN. FIGHT ON MY DEAR FAMILY

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bikerwifee's picture
Replies 0

I dont know how but Lynn ldh went down to 900 was 1300. The dr will not be doing the sixth gamma knife. Lynn is to weak. He starts Temador tomo but they gave us only a 15 to 20 percent chance in it working. Theres just nothing else for us to try. Lynn is a fighter and was willing to try this.

Lynn got saved a long time ago and hes says he knows hes going to heaven. I think hes ready but not ready he prayed today and asked God to heal him hes asked God to please take him home if he wasnt going to heal him. Ive never seen one man have so many people pulling for him. They recently had a bike run for him over 100 motorcycles and riders showed up. Ive seen people pray that I would have never thought could pray.

Thank all of you for responding when i just needed comforting words. I pray God continues to comfort snd heal each of you and I pray all these new drugs make it in time to save you all.

Lynn survived 5 gamma knife surgeries for 32 brain mets, ipi was a breeze no problems, zelobraf for 8 month and abaraxene and know on to temador. DONT EVER GIVE UP OR GIVE IN. FIGHT ON MY DEAR FAMILY

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bikerwifee's picture
Replies 3
Last reply 5/23/2013 - 6:19am
Replies by: BrianP, POW, Swanee

I dont know how but Lynn ldh went down to 900 was 1300. The dr will not be doing the sixth gamma knife. Lynn is to weak. He starts Temador tomo but they gave us only a 15 to 20 percent chance in it working. Theres just nothing else for us to try. Lynn is a fighter and was willing to try this.

Lynn got saved a long time ago and hes says he knows hes going to heaven. I think hes ready but not ready he prayed today and asked God to heal him hes asked God to please take him home if he wasnt going to heal him. Ive never seen one man have so many people pulling for him. They recently had a bike run for him over 100 motorcycles and riders showed up. Ive seen people pray that I would have never thought could pray.

Thank all of you for responding when i just needed comforting words. I pray God continues to comfort snd heal each of you and I pray all these new drugs make it in time to save you all.

Lynn survived 5 gamma knife surgeries for 32 brain mets, ipi was a breeze no problems, zelobraf for 8 month and abaraxene and know on to temador. DONT EVER GIVE UP OR GIVE IN. FIGHT ON MY DEAR FAMILY

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Here's the archive of today's webinar:  http://www.melanomainternational.org/news/til_nci.html 

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Sharon's picture
Replies 1
Last reply 5/22/2013 - 7:50pm
Replies by: NYKaren

May 6 my husband had another scan and blood work and all is clear! We thank God again for this wonderful news. He continues to go to the VA every three months for checkups. We are very thankful for their great care!

God, Family, Friends and Dogs ~ it's all that really matters!

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gabsound's picture
Replies 11
Last reply 6/4/2013 - 7:32am

Hi all,

I finished up 4 rounds of Abraxane, Avastin and Carboplatin and had scans last Friday. After my fist tretment I saw a soft tissue tumor on my back disappear. Another lesion on my arm went way down by the third treatment, but after the 4 th started growing again. It Is now quite large and uncomfortable. . The lesion on my back is growing back as well. The lesions in my liver I don't think are growing like the arm, or I would be in some serious pain. My bone mets in the spine are bothering me off and on. I started on a fentanyl patch and that is giving me less problems than the MS Contin. Such a balancing act, managing pain and the side effects from the pain meds ( nausea, constipation, sleepiness and for me anxiety).

Pet scan results show mixed response with liver and lungs looking better, but increase in a lot of the lymph nodes, soft tissue lesion in arm and thigh quite large as well as bones and buttocks region.

Brain MRI shows multiple small lesions in the cerebellar and cerebral hemispheres as well as a 19 mm lesion in the left occipital lobe. Devastating news!!

I had a good cry with my husband. We continued today with another chemo treatment which had the dose increased as it is helping some of the lesions.

Plan will be to meet with the radiation Oncologist and get going on treatment for the brain mets. My oncologist wants to start me on MEK inhibitor, hopefully it will be approved soon. He is checking on a trial, but I think brain mets exclude you from most trials. He will attend ASCO next week and hopefully there may be other options.

I am so thankful for all of you on this board. It really does help to have fellow warriors going through this together.

Praying for all of us, and let's keep moving forward .

Julie

I was diagnosed Jan 2011 stage 3. I hoped not to keep progressing like I am, but am so glad for the time I have had with my family and friends. I pray the quality of my life will remain good. Brain wise I think I am asymptotic I feel for my husband who gets all this news and has to support me. He does such a great job. I love him, and am so happy to have him in my life. My daughter will graduate from high school this June. I'm happy to be here for that as well.

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Replies by: NYKaren, Erinmay22, BrianP

My dad is in cycle 2. I would like feedback :)

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My dad is in cycle 2. I would like feedback :)

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kiser7677's picture
Replies 2
Last reply 5/21/2013 - 10:53pm
Replies by: washoegal, Fen

My husband was diagnosed with stage 3 melanoma last June 2012. He found a lump under his left arm. He had the lymph node removed and it was melanoma. After that they went back in and removed 8 more lymph nodes and they were all negative. He also had a mole removed, the mole was also Melanoma, but they had trouble getting a positive for Melanoma. The biopsy at the office was negative, the positive didn't come until it was completely removed with the positive lymph node at surgery. All scans were clear at that time. In September he started the intro a. And the in January of 2013 he had a reoccurrence in the exact same spot. Since he was taking the treatments we thought it was scar tissue. The Melanoma was directly behind his scar. So, that was removed. It was decided after that to do radiation. So, in March he started his radiation and the day after he finished, he found another lump in the same exact spot and that too is Melanoma. That's currently where we stand. He had a scan last Friday and we have our follow up appointment this Thursday and I pray it hasn't spread anywhere else. I guess my first question what's some other treatments and is this happen a lot? To get Melanoma with taking these treatments? Thanks for the info.

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bikerwifee's picture
Replies 9
Last reply 5/22/2013 - 8:08am
Replies by: Lori C, kylez, deardad, Fen, BrianP, Anonymous, Sherron, Phil S

I come to this page daily looking to see how everyone is. Looking for new treatment ideas and to find comfort and friends. I havent been able to do that or find many friends so Im signing off. I pray for the few I have gotten to know and pray for miracles in your lives. May God bless you.

To those that has been concerned Lynn has umdergone five gamma knife surgeries for 32 mets which are dead and dying. He has 7 new omes which means no clinical trial for us. He has umdergone, yervoy, zelobraf, abaraxene, and know temador which we all know to be pretty use. Hes very weak sleeps alot and im pretty sure when we go tomo they will put him on hospice. He says hes not given in and wamts to live but thetes just no treatments.

Belva loving wife to my warrior Lynn

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awillett1991's picture
Replies 7
Last reply 5/23/2013 - 8:21pm

Was wondering about you this morning. I hope all is well.

Amy

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