MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Rdmstm's picture
Replies 4
Last reply 6/15/2012 - 9:59pm
Replies by: Rdmstm, Janner

Ten days ago I went to my dermatologist for my yearly body scan. She removed a new freckle/mole, but didn't think it would be a problem. To my absolute shock, my DR informed me that I have melanoma. Below is the Path report from this original excision. I'm meeting with surgeons next week to discuss surgical options for a second excision,  and am extremely terrified they may tell me something very bad. I've been consuming myself with the internet, and other Path reports sound more detailed. Are these path reports of the second excisions?? On the below report I'm concerned that there is no depth measurement and the Microscopic description sounds frightening. Can anyone give me insight of the below terminology???  

Diagnosis: melanoma in-situ, early lesion
note: the lesion extends to lateral margins)

Clinical Data History:
shave w/ margins, 0.2 x 0.3 new 2 tone macule, R/O A typical nevus

Gross Description:
a shave biopsy of skin measuring 9 x 5 x 1 mm. 

Microscopic Description
Melanocytes, some of which have hyperchromatic nuclei, are arranged as solitary units and in nests with the epidermis.  There is poor circumscription and in foci melanocytes arranged as solitary units predominate over nests.

Still trying to awaken from this nightmare....

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Kimberly Duncan Watts's picture
Replies 4
Last reply 6/15/2012 - 10:45pm

Thanks ever so much for the prayers! Scan results were "unremarkable"! How I've learned to love the word! So for the second time since March, I am NED!!!!! Praying for these three little letters for ALL OF US!!!! Everyone have a beautiful day

I can do all things through Christ who strengthens me.

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Anonymous's picture
Anonymous
Replies 0

Hi Everyone,

I have learned so much from reading the post over the last 6 months.  I was wondering if anyone has experienced resistance to Zeboraf and how it was determined?  Also, other potential treatment options once resistance develops.

 

Thank you,

A

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Anonymous's picture
Anonymous
Replies 1
Last reply 6/15/2012 - 1:18am
Replies by: deardad

Hi Everyone,

I have learned so much from reading the post over the last 6 months.  I was wondering if anyone has experienced resistance to Zeboraf and how it was determined?  Also, other potential treatment options once resistance develops.

 

Thank you,

A

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lhaley's picture
Replies 13
Last reply 6/18/2012 - 5:22pm

Two weeks ago it was discovered that I had 1 new brain met (original was a little more than 2.6cm) and it was small at 3mm.  Yesterday I went in for brain mapping and was shocked to find out not only had this one grown but a new brain met has shown up.  On Monday I will be having SRS for both small mets. My oncologist wanted me into a trial for brain tumors with b-raf - it's the trial that James from Sydney has posted about it.  I have decided to stick with the radiation for now and hoping that I don't have to use the drug, I wish that the trial allowed for both the radiation and then the drug.   

In a little more than 2 weeks I will be celebrating my 6th year as stage IV.  This year has been the most stressful year of them all. 

Linda

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jackiewin's picture
Replies 6
Last reply 6/14/2012 - 11:33pm

A while ago, someone posted the phone number for Southwest Airlines reduced rates tickets for medical travel.  I would appreciate it if someone has the number they would post it.  This time, it's not MM i'm dealing with.  I was diagnosed with lung cancer and will trekking to MDA again.

 

Jackie W

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Lucassi's picture
Replies 2
Last reply 6/14/2012 - 10:11pm
Replies by: Lucassi, Janner

My husband Mike has stage V melanoma. (acral lent. with spread to lung)   He is scheduled for his fourth Yervoy infusion on Tuesday.  Has been tolerating the treatment well with no side effects other than fatigue.  However, he does have several (at least 4)  new mole-like bumps on his upper right leg about the size of a pencil eraser..  (same leg as primary tumor on rt. great toe).  The oncologist agreed that it is most likely melanoma but said that if the moles did not bother him he does not need to remove them at this time. Thinks they can be used as a marker to measure if the Yervoy is working.  I have been thinking about the situation and I believe it would be better to remove the moles.  Could it not be possible that these moles are a second primary?  What if the Yervoy does not work.  That would mean that these moles will just get bigger and become more invasive.   Although I am not a doctor, these moles look like nodular melanoma to me.  Has anyone else have a similar experience.   Your opinions would be greatly appreciated. 

Sigrid
 

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Anonymous's picture
Replies 3
Last reply 6/17/2012 - 2:51pm
Replies by: bcl, mantonucci, Charlie S

Hello, 

I'm a reporter working on a story about a recent congressional report suggesting tanning salons regularly give misinformation to would-be customers, particularly young women. I am posting in hopes of connecting with anyone here who took part in indoor tanning in the past and can tell me about their experience. Please feel free to contact me here or off list at bridget.huber [at] fairwarning.org. Thanks in advance for your help! -- Bridget

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panda's picture
Replies 5
Last reply 9/26/2012 - 8:37am

Hi everyone... just a quick question... it will sound relatively mild but ive been wondering. My father passed away from stage four melanoma two years ago. i went and had mine checked and i had a melanoma in very early stages on my back.. so i had it removed with a two centimetre margin. Have had a mole map and all other moles look ok, so im told... i have a rather large mole, size of tip of little finger lower abdomen area.... i have been told it does NOT look like a melanoma.. However im curious? it was quite small about ten years ago... a sort off tiny dot size.. it has grown over ten years... and is now almost size of tip of little finger area... but i am still told it does not look like melanoma.... Isnt a growing mole a sign of something not quite right? or is it normal for them to grow in size/???? also, should i just get it removed and checked anyway. The doctor and skin specialist tells me there is not cause to worry?? so should i believe them... or err on the side of caution?? thankyou all replies will be read and appreciated. 

today is a gift and thats why its called the present

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robbier's picture
Replies 1
Last reply 6/14/2012 - 2:02am
Replies by: JerryfromFauq

Well tomorrow I go for a cat  scan, then next Tuesday I will go so my Oncologist to get the result.  so far I have been in remission for 9 months now, and looking forward to getting a good report next week at checkup.  I can't believe that its been 9 months since surgery for melanoma,  classified at stage lll either A or B depending upon which Doctor you ask.   Haven't been to site lately, have decided to go to school and take a few classes.  Reapplying how to add, multiply and divide fractions.   

I believe in God and his son Jesus, I know that this is not everyones belief. I know that God has me in his hand, I might not like what I am going through but God is the one that gives me strength fromd day to day.

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Kimberly Duncan Watts's picture
Replies 5
Last reply 6/14/2012 - 9:26am

Scans yesterday. Prelim report in35 mins. Please please send what I call a ZAP prayer for NED.... Hugs for it and continued prayers for everyone. Thanks from the very depths of my heart and soul!

I can do all things through Christ who strengthens me.

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Anonymous's picture
Replies 3
Last reply 6/12/2012 - 8:43pm
Replies by: Janner, washoegal

Once melanoma enters the VGP, does that mean that the mole starts to raise up or form a visible tumor? Can a VGP melanoma be flat?

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LibbyinVA's picture
Replies 4
Last reply 6/14/2012 - 1:34pm

Just wondering...is PET scan still the best for determining metastasis of melanoma? It's been a while since I have done my homework in this area. If this is still true, does anyone have any suggestions on appealing insurance company denial of a PET scan?

I have melanoma but melanoma does not have me!

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Becky's picture
Replies 10
Last reply 6/13/2012 - 9:30pm

Hi

I don't post often but read these boards daily. As a recap, my son Ben was dx with MM in June 2009, right before his 21st birthday. It was very rare oral melanoma (tongue) that had spread to one lymph node. 2 surgeries and one year of interferon.

He had been getting scans every 6 month and was due for one in january. But he was planning a 3 month trip to Europe ( your typical euro-rail pass-backpack-youth hostel trip with a buddy) and I think he was afraid they would find something on the scan and he wouldn't be able to go, so he asked the doctor to put it off till he got back. So, my scanxiety was even higher since it had been almost  year since his last one.

Just got the rresults, still NED..feeling very blessed!

Keep fighting everyone

Becky

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Anonymous's picture
Replies 7
Last reply 7/12/2012 - 6:45pm
Replies by: Sia, Cindy33, Anonymous, alicia, KMW1011, AngelaM, Janner

Was it the same type of melanoma (superficial spreading if first was, etc)?  Did it grow and change? Was it deeper or more shallow than your first melanoma?

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