MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Gene_S's picture
Replies 4
Last reply 2/21/2013 - 4:18pm
Replies by: Gene_S, Beezer

http://www.naturalhealth365.com/natural_healing/cancer-cell.html

 

February 16, 2013 by Jonathan Landsman  
Filed under Natural Cures, Natural Healing

Sat. Feb. 16, 2013 by Blanche Levine

Vitamin D(NaturalHealth365) It’s true – vitamin D kills cancer cells! Best of all, here is a medical report you can’t afford to ignore. Scientists have recently uncovered a so called experimental approach to treating inflammatory breast cancer (IBC), a rare and aggressive form of the disease.

The new approach uses the active form of vitamin D3, calcitriol, which is delivered by quantum dots to IBC tumors. Quantum dots are engineered, miniscule delivery vehicles which can maneuver directly to a tumor site.

New technology uses nature to destroy cancer cells

Our skin can actually manufacture enough levels of calcitriol (vitamin D) in as little as 15 minutes of sunlight per 24 hours.

What will hinder this process is sunscreen and how dark we are, the darker the pigmentation of the skin the more sunlight that is needed. Obesity, also curtails the circulation of vitamin D and age reduces the ability to manufacture vitamin D.

Vitamin D is found in foods, but the human body synthesizes most of this nutrient from sunlight. Since we now get so little in the way of unhindered sunlight, the new approch is to use Quantum dots and engineered light-emitting nanoscale delivery. The study shows that dots can be used to rapidly move high concentrations of calcitriol to targeted tumor sites where cancer cells are located.

They can go through the lymphatic system where the cancer finds its path to spread. So now calcitriol can fight cancer on different fronts. As more studies keep pilling up to support the notion that low vitamin D levels promote breast cancer – pharmaceutical companies are developing altered vitamin D molecules.

Low vitamin D levels could be a death sentence

Breast cancer patients with low levels of vitamin D have more aggressive tumors and poorer outcomes, a new study finds. Experts say the new findings support what many oncologists have long suspected.

“There has been suspicion that vitamin D is related to breast health in some way, although the particular pathway is still unknown,” noted Dr. Laurie Kirstein, a breast surgeon at Beth Israel Medical Center in New York City.

“Many oncologists are already following vitamin D levels in their breast cancer patients, and recommending supplements for low levels,” added Kirstein, who was not involved in the new study.

Researchers Jeremy Bonor, Rachel Schaefer, and Ania Nohe wanted to see if they could deliver high concentrations of vitamin D to tumors in mice using quantum dots. By the way, women with a low level of vitamin D at the time of diagnosis are 94 percent more likely to have their cancer spread and 73 percent less likely to reach the 10 year survival mark.

Nanotechnology works at the molecular level, and quantum dots are tiny light-emitting crystals that can be engineered to seek out a particular disease or type of cell. The quantum dots were used as an experiment with mice. So the advice of the medical experts is don’t run to the doctor for this yet, as it may take years to make this available to the public.

But, sunlight is available now to boost immunity; protect us from colds; the flu and now even cancer. So, let’s be honest, it can’t hurt to add (if needed) a high quality, vitamin D supplement to our daily routine. Help us spread the word – share this article with family and friends.

About the author: Blanche Levine has been a student of natural healing modalities for the last 25 years. She has the privilege of working with some of the greatest minds in natural healing including Naturopaths, scientist and energy healers. Having seen people miraculously heal from all kinds of dis-ease through non-invasive methods, her passion now is to help people become aware of what it takes to be healthy.

Sources:
http://www.eurekalert.org/pub_releases/2013-02/aiop-qdd020113.php
http://health.usnews.com/health-news/family-health/cancer/articles/2011/...
http://www.vitamindcouncil.org/quantum-dots-deliver-vitamin-d-to-tumors-...

SUBSCRIBE TODAY! Click here to join the NaturalNews Inner Circle – a monthly (online) subscription offering exclusive audio interviews, video events, natural health product discounts, free gifts plus much more!

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

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Maereard's picture
Replies 4
Last reply 2/21/2013 - 3:28pm
Replies by: Maereard, Janner

Hello again everyone!
I have more questions as always:-) I had a crazy spot removed in August that was melanoma. My scar looks great and I have not had any bumps or things they told me to look for. That's my good news! I noticed a few nights ago that I have a spot that looks just as ugly and discolored as the first spot growing about four inches above my scar line. I am scheduled to see my dermatologist tomorrow. My questions is if it is melanoma then it would be a second primary, right? If I understand right then that is not as bad as it would be if it was the first one coming back??? So then would it change my stage? I am currently a stage 1 because my first one was only .25mm but if in fact this is another one does that increase my chances that it would be in my lymph nodes:-(? I did not have them biopsied in August since my primary was so small. As always any information you can give me I thank you for in advance;-)!
Beth

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Anonymous's picture
Replies 2
Last reply 2/21/2013 - 12:57pm
Replies by: rdd, Janner

A 20 year old loved one very recently got a dark mole and a tiny one the size of a pin right next to it removed from his finger.  The Pathologist Comments are as follows:

There are nested melanocytes at the junction with focal bridging between rete.  Scattered single cells are at the junction and in the mid-epidermis.  Rare melanocytes are in the granular layer.  Junctional melanocytes have enlarged epithelioid nuclei and coarsely pigmented cytoplasm.  One mitosis seen.  Melanophages surround the dermal vessels.  These features are in keeping with a junctional nevus with atypical features on acral skin.  It extends to a peripheral biopsy edge.  Complete excision is recommended.

The specimen was an irregular portion of tan skin measuring 0.7 x 0.4 x 0.1 cm, margins painted blue.  

Can someone please tell me what all this means.  We are very worried.  The nurse (not the doctor) called us and told us it was just an atypical mole they want to remove fully.  When we had gone to see the dermatologist he didn't want to remove it but we asked for it to be removed as it just didn't look right to us and now we have this pathology report.  

Does this type of diagnosis mean this person is more susceptible to melanoma?  Should we get his other moles checked.  We are a moley family.  How are we going to ensure they get all of it when they excise it.   Please help us understand.  I have been trying to research as much as I can for the last 2 days since we got the report.  Thank you and god bless everyone.  

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Hello again everyone!
I have more questions as always:-) I had a crazy spot removed in August that was melanoma. My scar looks great and I have not had any bumps or things they told me to look for. That's my good news! I noticed a few nights ago that I have a spot that looks just as ugly and discolored as the first spot growing about four inches above my scar line. I am scheduled to see my dermatologist tomorrow. My questions is if it is melanoma then it would be a second primary, right? If I understand right then that is not as bad as it would be if it was the first one coming back??? So then would it change my stage? I am currently a stage 1 because my first one was only .25mm but if in fact this is another one does that increase my chances that it would be in my lymph nodes:-(? I did not have them biopsied in August since my primary was so small. As always any information you can give me I thank you for in advance;-)!
Beth

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thrashter's picture
Replies 2
Last reply 2/20/2013 - 7:33pm
Replies by: thrashter, jag

Have to decide tonight on 4th round. Have (2) un resectable tumors near clavicle and vein. Tumors have not shrunk but have not grown. PET activity has lowered but not gone away. No direct evidence of 4th round extending overall life expectancy. Struggling with decision. Talked to surgeon he is debating doing exploratory surgery to look at where tumors are to see if he can get to them without nicking vein or nerve. Looking to see if any one has had similar experiance and what they did. Thanks

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Mandi0280's picture
Replies 7
Last reply 2/20/2013 - 3:23pm
Replies by: Gene_S, Mandi0280, Anonymous, washoegal

Hello,

 

 Wanting to know what everyone here knows about scan intervals. Since my husband was diagnosed with melanoma in October 2011 I have done a fair amount of research and thought that I knew when scans would be due. Long story kinda short...after diagnosis he done ipi until he couldn't take it anymore. One month of interferon and scans every 3 months. He was 1 year NED as of October 2012. We just had a followup with his oncologist who said we will see you back in August  and did not schedule any scans. This was very shocking to me. I do know in October he told us it was getting harder and harder for him to get scans done for people due to insurance reasons but i'm still a little worried about this. Has anyone else waited this long in between scans after just 1 year NED? This will put my husband at 10 months in between scans

 

Thanks

Mandi

Mandi

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ChrisB's picture
Replies 6
Last reply 2/20/2013 - 2:12pm

 

Ten years ago today I had a CT scan that showed a lesion to my lung advancing me to Stage IV.  My status for the majority of these past ten years has been stable/manageable disease.

While my journey has certainly had its moments of successes and disappointments I have been fortunate in that I am still able to live a somewhat normal life and continue to work full time.  I know that this might not be the average life of a stage IV patient but I’m hoping this post gives at least a glimmer of hopefulness to others.

My heart goes out to all of you, patients and caregivers alike.

Chris

 

Stage IV February 19th, 2003

Manageable Disease since October 1st, 2004

ChrisB~StageIV on MPIP

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Hi all, so sorry to be back. My husbands first diagnosis in 2001 brought me to the board and I

was on often, but over the years I really felt it was OK. He had a chest xray with us thinking

he had bronchitis/pneumonia (coughing, hoarse) and they found a 3.8 x 3.4 lung mass and

several nodules. Also scattered masses over abdomen. They did a biopsy of the lung mass and

found it positive for melanoma. We have an oncologist appt Wednesday. I am terrified. He is 58

we have one daughter age 20, we went to her college yesterday and told her, but downplayed it

so as to not worry her. I am so scared because he seems so sick and because of the stomach.

I have a call in to Sylvester Center in Miami as well where he went the first time - he did a year of

interferon then. But the oncologist has a good reputation as well so I guess we will start there. I

imagine they will do a brain ct to check for brain mets? Primary says they will probably remove

lung mass via surgery. I have a list of questions - what about liver, is he braf positive, ive read

about yervoy and ipi which sound promising. I just want to stop crying. I know I need to be strong.

Thanks for any advice. He is 58 fit and healthy otherwise..

Vicki his loving wife

Never give up!

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Lauri England's picture
Replies 7
Last reply 2/20/2013 - 10:36am

I was looking for any people out here that has had Melanoma in there rib cage.  I had a Pet Scan and left rib cage 3rd rib down lit up on the scan.  Originally the doctors thought it was from a previous injury, but that was ruled out with a rib cage xray and nothing showed up.  I am scheduled to have a bone biopsy this Friday.  What I was wondering is if anyone has had this and absolutly no pain.  I have no pain or symptons.  What other possibilities could it be if not melanoma?  Everything I have read out here people seem to experience pain associated with bone melanoma.  Has anyone ever had this with NO PAIN???? Thank you so much for comments and other subjestions..

Don't sweat the small stuff. There are bigger fish to fry!

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Carole K's picture
Replies 1
Last reply 2/19/2013 - 8:22pm
Replies by: POW

What happened to the post I did earlier about being in chat tonight at 7 PM EST and Dian from spokane and Lucklu couldn't sing in and I was booted. There is no sign of my original post.  What is going on?

Love and Light

Carole K

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Hi Everyone,

I posted I would be in chat tonight starting 7PM EST.  I signed in without problem. Two others tried to sign in and were not able. I was booted  and can't sign on again.  This is very strange.  MRF What is going on ? 

Carole K

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Carole K's picture
Replies 3
Last reply 2/19/2013 - 6:47pm

HI Everyone,

Just wanted to let you know I am sending out an  e-mail to those I have met in chat and others I have known from Chat for many years.  John F, Kyle, Doro, Colleen, Janet, and so many more whose names have escaped me I hope to see you again tonight.  Your stories and your attitudes are amazing,  I just want all of you to find the caring and support I did for many many years.  Let's all try to bring Chat back to what it once was.

I have so many questions for those of you who are on treatment.  There are quite a few new treatments I was not aware of. 

Hope to see you there,

Love and Light

Carole K

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Gene_S's picture
Replies 7
Last reply 2/19/2013 - 6:25pm
Replies by: Anonymous, LynnLuc, Gene_S

Richard Weller: Could the sun be good for your heart?

Our bodies get Vitamin D from the sun, but as dermatologist Richard Weller suggests, sunlight may confer another surprising benefit too. New research by his team shows that nitric oxide, a chemical transmitter stored in huge reserves in the skin, can be released by UV light, to great benefit for blood pressure and the cardiovascular system. What does it mean? Well, it might begin to explain why Scots get sick more than Australians ...

more info at:   http://www.ted.com/talks/richard_weller_could_the_sun_be_good_for_your_heart.html

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

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The MRF is looking for two patients with stage IIIB-IV cutaneous melanoma who are willing to review and provide feedback on portions of a protocol as presented at an ad board for Novartis Pharmaceuticals in East Hanover, NJ.  We woiuld also appreciate patients in lower stages as well.  The upcoming advisory board will be held on February 25th.  The meeting start time is 11:00 am and will end at approximately 3:30 pm.  Participants are welcome to come to town the night before and stay at the host hotel which is the Hilton Parsippany.  All travel expenses will be reimbursed.  Please contact Torrey Shallcross at tshallcross@melanoma.orgif you are interested in participating.

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buckytom's picture
Replies 5
Last reply 2/19/2013 - 2:28pm
Replies by: Anonymous, jeffjohn78, audgator, alabama girl

After having a neck dissection my doctors (including specialist from Mayo) believe that I should go thorugh radiation - 5 treatments over the course of 2 1/2 weeks. I know the docs have to give you the list of all of the side effects - has anyone here went through this radiation therapy - and if so what were your side effects? Any suggestions on how to eleviate them?

Thanks!

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