MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Gene_S's picture
Replies 7
Last reply 2/19/2013 - 6:25pm
Replies by: Anonymous, LynnLuc, Gene_S

Richard Weller: Could the sun be good for your heart?

Our bodies get Vitamin D from the sun, but as dermatologist Richard Weller suggests, sunlight may confer another surprising benefit too. New research by his team shows that nitric oxide, a chemical transmitter stored in huge reserves in the skin, can be released by UV light, to great benefit for blood pressure and the cardiovascular system. What does it mean? Well, it might begin to explain why Scots get sick more than Australians ...

more info at:   http://www.ted.com/talks/richard_weller_could_the_sun_be_good_for_your_heart.html

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

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Mickey n Jo's picture
Replies 3
Last reply 2/21/2013 - 10:24pm

My husbands Pet/Ct results from Thursday, Feb. 14 were not what we were hoping for.  The majority of hypermetabolic soft tissue nodules and lymph nodes have increased slightly in size, but the intensity of the hypermetabolic activity has not changed.  Also multiple small enhancing lesions in the brain have been detected which are highly suspicious for brain mets. He is having a brain MRI on Friday, Feb. 22.  His melanoma specialist recommends staying on Zel, 3 and 3, until we get the results of the MRI. She feels that Zel is still keeping mets in his body in check for now.  Depending on the results of the MRI, the next step will probably be radiation. I'm not sure if that means WBR or Gamma Knife. I thought that Gamma Knife wouldn't be an option for multiple lesions. Is that correct or not? Forgive me, but I'm a little confused and upset right now. Trying to keep a PMA, but sometimes it's really hard. Any info you could give us would be greatly appreciated. We value your input a lot.

                                Thanks,

                                    Jo

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buckytom's picture
Replies 5
Last reply 2/19/2013 - 2:28pm
Replies by: Anonymous, jeffjohn78, audgator, alabama girl

After having a neck dissection my doctors (including specialist from Mayo) believe that I should go thorugh radiation - 5 treatments over the course of 2 1/2 weeks. I know the docs have to give you the list of all of the side effects - has anyone here went through this radiation therapy - and if so what were your side effects? Any suggestions on how to eleviate them?

Thanks!

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Hi all, so sorry to be back. My husbands first diagnosis in 2001 brought me to the board and I

was on often, but over the years I really felt it was OK. He had a chest xray with us thinking

he had bronchitis/pneumonia (coughing, hoarse) and they found a 3.8 x 3.4 lung mass and

several nodules. Also scattered masses over abdomen. They did a biopsy of the lung mass and

found it positive for melanoma. We have an oncologist appt Wednesday. I am terrified. He is 58

we have one daughter age 20, we went to her college yesterday and told her, but downplayed it

so as to not worry her. I am so scared because he seems so sick and because of the stomach.

I have a call in to Sylvester Center in Miami as well where he went the first time - he did a year of

interferon then. But the oncologist has a good reputation as well so I guess we will start there. I

imagine they will do a brain ct to check for brain mets? Primary says they will probably remove

lung mass via surgery. I have a list of questions - what about liver, is he braf positive, ive read

about yervoy and ipi which sound promising. I just want to stop crying. I know I need to be strong.

Thanks for any advice. He is 58 fit and healthy otherwise..

Vicki his loving wife

Never give up!

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Hi all, so sorry to be back. My husbands first diagnosis in 2001 brought me to the board and I

was on often, but over the years I really felt it was OK. He had a chest xray with us thinking

he had bronchitis/pneumonia (coughing, hoarse) and they found a 3.8 x 3.4 lung mass and

several nodules. Also scattered masses over abdomen. They did a biopsy of the lung mass and

found it positive for melanoma. We have an oncologist appt Wednesday. I am terrified. He is 58

we have one daughter age 20, we went to her college yesterday and told her, but downplayed it

so as to not worry her. I am so scared because he seems so sick and because of the stomach.

I have a call in to Sylvester Center in Miami as well where he went the first time - he did a year of

interferon then. But the oncologist has a good reputation as well so I guess we will start there. I

imagine they will do a brain ct to check for brain mets? Primary says they will probably remove

lung mass via surgery. I have a list of questions - what about liver, is he braf positive, ive read

about yervoy and ipi which sound promising. I just want to stop crying. I know I need to be strong.

Thanks for any advice. He is 58 fit and healthy otherwise..

Vicki his loving wife

Never give up!

Login or register to post replies.

Hi all, so sorry to be back. My husbands first diagnosis in 2001 brought me to the board and I

was on often, but over the years I really felt it was OK. He had a chest xray with us thinking

he had bronchitis/pneumonia (coughing, hoarse) and they found a 3.8 x 3.4 lung mass and

several nodules. Also scattered masses over abdomen. They did a biopsy of the lung mass and

found it positive for melanoma. We have an oncologist appt Wednesday. I am terrified. He is 58

we have one daughter age 20, we went to her college yesterday and told her, but downplayed it

so as to not worry her. I am so scared because he seems so sick and because of the stomach.

I have a call in to Sylvester Center in Miami as well where he went the first time - he did a year of

interferon then. But the oncologist has a good reputation as well so I guess we will start there. I

imagine they will do a brain ct to check for brain mets? Primary says they will probably remove

lung mass via surgery. I have a list of questions - what about liver, is he braf positive, ive read

about yervoy and ipi which sound promising. I just want to stop crying. I know I need to be strong.

Thanks for any advice. He is 58 fit and healthy otherwise..

Vicki his loving wife

Never give up!

Login or register to post replies.

Hi all, so sorry to be back. My husbands first diagnosis in 2001 brought me to the board and I

was on often, but over the years I really felt it was OK. He had a chest xray with us thinking

he had bronchitis/pneumonia (coughing, hoarse) and they found a 3.8 x 3.4 lung mass and

several nodules. Also scattered masses over abdomen. They did a biopsy of the lung mass and

found it positive for melanoma. We have an oncologist appt Wednesday. I am terrified. He is 58

we have one daughter age 20, we went to her college yesterday and told her, but downplayed it

so as to not worry her. I am so scared because he seems so sick and because of the stomach.

I have a call in to Sylvester Center in Miami as well where he went the first time - he did a year of

interferon then. But the oncologist has a good reputation as well so I guess we will start there. I

imagine they will do a brain ct to check for brain mets? Primary says they will probably remove

lung mass via surgery. I have a list of questions - what about liver, is he braf positive, ive read

about yervoy and ipi which sound promising. I just want to stop crying. I know I need to be strong.

Thanks for any advice. He is 58 fit and healthy otherwise..

Vicki his loving wife

Never give up!

Login or register to post replies.

Lauri England's picture
Replies 7
Last reply 2/20/2013 - 10:36am

I was looking for any people out here that has had Melanoma in there rib cage.  I had a Pet Scan and left rib cage 3rd rib down lit up on the scan.  Originally the doctors thought it was from a previous injury, but that was ruled out with a rib cage xray and nothing showed up.  I am scheduled to have a bone biopsy this Friday.  What I was wondering is if anyone has had this and absolutly no pain.  I have no pain or symptons.  What other possibilities could it be if not melanoma?  Everything I have read out here people seem to experience pain associated with bone melanoma.  Has anyone ever had this with NO PAIN???? Thank you so much for comments and other subjestions..

Don't sweat the small stuff. There are bigger fish to fry!

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Hello everyone,

I am a dark skinned person, Indian. I thought Melanoma only affects people with lighter skin.
But I recently educated myself that it is not the case.

I was concerned about a mole or a red patch that was under the foot, sole of my foot. I vaguely remember seeing it a long time ago as a single red spot, it didn't pain or anything so I left it.

Recently after I got to know about Melanoma and its ABCDE, I looked at this patch which seemed to fit well with Melanoma diagnosis. I once showed this to a doctor, at that time he said it is probably a broken blood vessel it doesn't look like a mole, just ignore it but keep an eye on it.

This is making me paranoid that it has irregular edges, but it is completely flat. It is not raised and it is over 6mm. 

I am posting the pictures and links here, if anyone can give an insight it would be nice. 

 

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sheri47's picture
Replies 4
Last reply 2/18/2013 - 10:22am
Replies by: Sandy11, Anonymous, Phil S, POW

Lost my mom char on jan 31 her battle began in 1982, recurrences in 2001,2005,2009 , 2011, and 2012 to the brain , she was a fighter til the bitter end , so proud to have called her my mom , loved her so much .

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Gene_S's picture
Replies 4
Last reply 2/21/2013 - 4:18pm
Replies by: Gene_S, Beezer

http://www.naturalhealth365.com/natural_healing/cancer-cell.html

 

February 16, 2013 by Jonathan Landsman  
Filed under Natural Cures, Natural Healing

Sat. Feb. 16, 2013 by Blanche Levine

Vitamin D(NaturalHealth365) It’s true – vitamin D kills cancer cells! Best of all, here is a medical report you can’t afford to ignore. Scientists have recently uncovered a so called experimental approach to treating inflammatory breast cancer (IBC), a rare and aggressive form of the disease.

The new approach uses the active form of vitamin D3, calcitriol, which is delivered by quantum dots to IBC tumors. Quantum dots are engineered, miniscule delivery vehicles which can maneuver directly to a tumor site.

New technology uses nature to destroy cancer cells

Our skin can actually manufacture enough levels of calcitriol (vitamin D) in as little as 15 minutes of sunlight per 24 hours.

What will hinder this process is sunscreen and how dark we are, the darker the pigmentation of the skin the more sunlight that is needed. Obesity, also curtails the circulation of vitamin D and age reduces the ability to manufacture vitamin D.

Vitamin D is found in foods, but the human body synthesizes most of this nutrient from sunlight. Since we now get so little in the way of unhindered sunlight, the new approch is to use Quantum dots and engineered light-emitting nanoscale delivery. The study shows that dots can be used to rapidly move high concentrations of calcitriol to targeted tumor sites where cancer cells are located.

They can go through the lymphatic system where the cancer finds its path to spread. So now calcitriol can fight cancer on different fronts. As more studies keep pilling up to support the notion that low vitamin D levels promote breast cancer – pharmaceutical companies are developing altered vitamin D molecules.

Low vitamin D levels could be a death sentence

Breast cancer patients with low levels of vitamin D have more aggressive tumors and poorer outcomes, a new study finds. Experts say the new findings support what many oncologists have long suspected.

“There has been suspicion that vitamin D is related to breast health in some way, although the particular pathway is still unknown,” noted Dr. Laurie Kirstein, a breast surgeon at Beth Israel Medical Center in New York City.

“Many oncologists are already following vitamin D levels in their breast cancer patients, and recommending supplements for low levels,” added Kirstein, who was not involved in the new study.

Researchers Jeremy Bonor, Rachel Schaefer, and Ania Nohe wanted to see if they could deliver high concentrations of vitamin D to tumors in mice using quantum dots. By the way, women with a low level of vitamin D at the time of diagnosis are 94 percent more likely to have their cancer spread and 73 percent less likely to reach the 10 year survival mark.

Nanotechnology works at the molecular level, and quantum dots are tiny light-emitting crystals that can be engineered to seek out a particular disease or type of cell. The quantum dots were used as an experiment with mice. So the advice of the medical experts is don’t run to the doctor for this yet, as it may take years to make this available to the public.

But, sunlight is available now to boost immunity; protect us from colds; the flu and now even cancer. So, let’s be honest, it can’t hurt to add (if needed) a high quality, vitamin D supplement to our daily routine. Help us spread the word – share this article with family and friends.

About the author: Blanche Levine has been a student of natural healing modalities for the last 25 years. She has the privilege of working with some of the greatest minds in natural healing including Naturopaths, scientist and energy healers. Having seen people miraculously heal from all kinds of dis-ease through non-invasive methods, her passion now is to help people become aware of what it takes to be healthy.

Sources:
http://www.eurekalert.org/pub_releases/2013-02/aiop-qdd020113.php
http://health.usnews.com/health-news/family-health/cancer/articles/2011/...
http://www.vitamindcouncil.org/quantum-dots-deliver-vitamin-d-to-tumors-...

SUBSCRIBE TODAY! Click here to join the NaturalNews Inner Circle – a monthly (online) subscription offering exclusive audio interviews, video events, natural health product discounts, free gifts plus much more!

Live 4 today. Thank God for all he has done for us. Looking forward to enjoying tomorrow.

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BernieB's picture
Replies 10
Last reply 2/25/2013 - 11:21pm

 

I am looking for input.
This is my situation.  I was diagnosed with a T2 melanoma with a negative Sentinel lymph node in 2006.
No issues till just before Christmas 2012 when I found inguinal lymph node.
Pet scan was positive for a hyper metabolic inguinal load otherwise negative. MRI was negative. I had a inguinal lymph node section, the original note that I felt was positive in but all the other nodes, 14, when negative
I am otherwise in good health, do not feel sick, and 69 years old, working full-time, so what do I do?
The adverse events with interventions sound really bad. Is waiting for the next recurrence and then intervening reasonable?
Getting a genetic marker for my melanoma is certainly a painless step.
BernieB

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Marcia1's picture
Replies 3
Last reply 2/17/2013 - 10:42pm
Replies by: Janner, NYKaren

Thanks to everyone who responded last week when my mother was in the hospital for dehydration and uncontrollable diarrhea.  They didn't use the Rimicade (sp.) but seemed to get it stopped with steroids.  Then she didn't go for 4 days and they gave her Go Lytley - sent her home this past Tuesday and now she's back in the hospital with a blood infection, renal failure and checking for cellulitis.  Her legs swelled up so much they were draining thru holes in her leg.  She doesn't feel really sick, but is weak.  I don't know if all of this came from the Yervoy treatment or not.  She's pretty much decided not to have another treatment, which the doctor did want to give her.  She'll be 87 this Thursday.

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good pet scan and brain mri yesterday.

only one small spot at suv 3 left. stable from 3 months ago.

zel goes on at half dose, prednisone stopped.

4 years down the road since stage iv diagnosis. Never thought i'd make it that long when it started....

Also never thought my straight scandinavian hair would turn into a beige-greyish version of the haircut of Michael Jackson young.

 

Beatrice stage IV

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cld's picture
Replies 8
Last reply 2/17/2013 - 12:00pm

3 months clear...not a long time i know,  but we all start somewhere, right?

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