MPIP: Melanoma Patients Information Page

The MPIP is the oldest and largest community of people affected by melanoma hosted through the Melanoma Research Foundation. It is designed to provide support and information to caregivers, patients, family and friends. Once you have been touched by melanoma—either as a patient or as a family member or friend of a patient—you become part of a community. It is not a community anyone joins willingly. But if you must be part of this group, you will find no better place to find the tools you need in your journey with this cancer, and the friends who can make that journey more bearable.

The information on the bulletin board is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

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Lori C's picture
Replies 7
Last reply 3/15/2017 - 5:31am

Will is one week past his first carboplatin and taxol treatment.  He's also on a Fentanyl patch for pain, the first time his hip pain has been properly addressed.  So far, he's feeling very well - eating fine, (he wants to go out for Italian food for lunch) and actually seems slightly less fatigued than before he began chemo, which is a bit mysterious.   He goes back for round 2 on August 10th. 

At this point, we've been extremely pleased with the care from Dr. Howard Kaufman and the nurses at Rush in Chicago.  Dr. Kaufman, who is a surgeon as well as head of oncology and a melanoma specialist, is not exactly a touchy/feely kind of doc but he's honest, careful, attentive, and obviously a very excellent doctor.  A huge relief.  And the nurses have been wonderful, especially given Will has some special needs and is not always the easiest person to communicate with.

I'm hoping things will be stable for a while, at the very worst, and at best, this will really reduce the tumors.

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lhaley's picture
Replies 4
Last reply 7/29/2010 - 11:28am
Replies by: kwahlbin, dian, Carver

I'm just testing and discovered that I am now lhaley instead of Linda from Myrtle Beach.  That's ok because we are officially moving from the beach next Wed.!!  

This will take some time to get used to but it's interesting seeing how many times a post has been viewed and how many are online. If one person views a post twice does it go down as one view or two?

I just scanned downand saw that you can be alerted if people reply. That is a great addition!

Linda

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tab22's picture
Replies 0

Just see whether I know how to use the new forum.

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Kimmer's picture
Replies 4
Last reply 7/29/2010 - 11:27am
Replies by: kwahlbin, dian, Carver

Just testing the new format along with some other people.  For some reason I have to be Kimmer now instead of KimJ, but my other aliases have been Kim from Birmingham, Beaufort, Florida, Floridogz, etc.

Take good care, K.

And remember, no matter where you go, there you are. Confucius

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 Just testing new board....looks great

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Kim K's picture
Replies 1
Last reply 8/15/2013 - 12:30am
Replies by: JerryfromFauq

But if it did, I should be seeing double

Cancer Sucks Shit Happens Nothing is ever 100% bad, there is a reason and silver lining in everything. Sometimes I need a good light and my glasses to find it though. You can't fix stupid.

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Hope it works.

Cancer Sucks Shit Happens Nothing is ever 100% bad, there is a reason and silver lining in everything. Sometimes I need a good light and my glasses to find it though. You can't fix stupid.

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Tim D's picture
Replies 0

Testing 123

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admin's picture
Replies 4
Last reply 7/29/2010 - 12:10pm
Replies by: kwahlbin, W., admin

from miket

 

On the main board, the topics are not in chronological order.

 

Is there any way I can alter this?

 

What is the logic for the current order?

 

Also when I click on the back button, it takes me two windows back and the I have to click on the bulletin board to go one window forward to the main board.

 

I am using firefox rather than ie6. Does this make a difference?

 

I appreciate the effort in trying to improve the format and I guess an old f--t like me will have to learn some new tricks.

 

regards

 

miket

 

ps I am double spacing right now as single spacing does not work for me and all my sentences run into one another

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MaryBZ's picture
Replies 0

Just playing around with the new set up!

You don't know what your future holds but you know who holds your future!

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Sherron's picture
Replies 0

Just testing this out, to be sure I am understanding all this correctlly.

Take Care,

Sherron

 

 

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dian's picture
Replies 5
Last reply 7/30/2010 - 1:23am
Replies by: mlittle, dian, DonW, Anonymous, Janner

I don't seem to have a ..well..bottom, to the screen when I open a post..so I can't scroll from left to right, only up and down. So I can't see a whole post. The right side is cut off for me. To read Janis' reply to Charlie down below, I had to actually hit the 'reply to' button, then it showed up above the reply spot.

am I alone in this? does everyone else have a horizontal scroll bar along the bottom of the posts?

dian

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Tim--MRF's picture
Replies 1
Last reply 10/2/2011 - 4:02am
Replies by: JerryfromFauq

MRF has established a partnership with Cosmopolitan Magazine.  As part of that we have created a web page for donations.  Anyone who gives $10 or more gets a special bracelet Cosmo designed. 

Here's the neat part.  When you make the donation you have the option of leaving a comment.  The comments people have left are amazing.  Just a few words, but a lot of passion.  We have comments from patients, friends, family members. 

Might be worth taking a minute or two to read through them.  I found it inspiring.  One person is 23 year survivor of Stage III melanoma!

Here's the link:  www.firstgiving.com/cosmopolitan

Tim

 

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Carver's picture
Replies 4
Last reply 12/20/2011 - 5:39pm
Replies by: LaneyMcg, Carver, Kimmer

I noticed someone below asked how to start a new topic so I thought I'd test that out. After I logged in I looked on the right, I saw I had the option of starting a new topic with my name or anonymously. For the record I'm not 3 years old but for now I'm using a VERY old shot of me as a young girl for my profile. I tried changing it to a cropped one that didn't cut my head off but once I saved my profile shot it didn't seem to let me change it so for now you might want to be careful what you upload.

"A closed mind is a wonderful thing to lose"

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Tim--MRF's picture
Replies 1
Last reply 11/23/2011 - 5:15pm
Replies by: phyllispj

I have been contacted by a national reporter interested in speaking with a couple of patients who are currently enrolled in the Phase III study of the BRAF inhibiter in development from Roche/Plexxikon.  This reporter wants to hear a patient's perspective on the trial.  This is a great opportunity to have unfiltered patient input into the clinical trial process.

If you are please send me an e-mail and I will forward it along to the reporter.

Thanks

Tim--MRF

tturnham@melanoma.org

 

 

 

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