Iowagirl

Diagnosed November 2014 malignant melanoma Stage IIIa.

 

The original tumor removed from my belly in November 2014, along with 2 lymph nodes.  One of those nodes tested positive for cancer thus I had the second surgery - complete axillary lymph node dissection in December, having 27 additional nodes removed on the right side.  Had my Jackson-Pratt drain removed after 35 days.  Five and half weeks post-op and just feeling better, getting range of motion back in my arm, though surviving burning pain on the underside of my arm only by daily lidocaine patches and wearing rash guard shirts. Thank YOU UNDER ARMOR! Oncologist suggests clinical trial which I am likely going to do.   

Mon, 2015-01-26

Comments

Christinad - (1/31/2015 - 1:53pm)

I was diagnosed with stage IIIa melanoma December 2014 and was told Interferon is my only option for treatment. What clinical trial are you going to try? 

SusanKlueverBerg - (2/13/2015 - 11:25pm)

Hi :),

I'm hoping to get into the Polynoma study, a clinicial trial- vaccine.  But I may not be able to due to low white blood cell count.   And honestly, my Oncologist said no way to Interferon.

 

Best,

 

Susan

Wolverine - (2/3/2015 - 3:44pm)

Thanks for sharing your story.  My story had some similarities with yours.  I had the lymph node dissection done in Sept. 2012 and that was their second trip under my right arm.  The first surgery was to remove and egg sized tumor which used to be a lymph node.  I did the interferon for about 6 months.  So far I have had clear scans and go every 3 months.  There was a trial between Interferon and Yervoy but I drew the interferon.  There are a lot of nerves under your arm and I have started exercising with weights, mountain biking, etc... and my arm pit has gotten less sensitive but it takes some time.  Hang in there and prayers coming your way.

 

 

 

Everyday is a Gift so Fight Strong, Live Long

SusanKlueverBerg - (2/17/2015 - 9:27am)

Thanks for sending prayers!  Oh, I hate talking about my armpit-  and my arm but they are so so sore :(  But getting better.  I love spending time outside-  have you changed your attire outside- like do you wear a cloak?  or how do you deal with that?

 

Thanks! :)

kjt - (11/5/2015 - 10:55pm)

Hello - Also from Iowa. Interested to know what you did after your CLND and if you are being treated at all in Iowa.  Thanks!

SusanKlueverBerg - (11/7/2016 - 4:42pm)

Haven't been on this for a while. I am being treated at UIHC on the MAVIS clinical trial.